Watching a Meningioma Brain Tumor

Posted by robinem @robinem, Feb 8, 2018

I've just been diagnosed with a 2cm meningioma tumor on the right front of my head. I am 59 years old and the surgeon has told me I will need to "do something" with my tumor someday since I am younger. What is the benefit of waiting?

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Profile picture for mono21 @mono21

It’s a doctor in Santa Fe. I’m waiting for an appointment at the Mayo in Rochester. I honestly thought it was kinda crazy because it’s growing and he just wants to keep on it. He is a neurosurgeon.
Thank yiu

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Oops he wants to keep an eye on it.
Thank you

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Profile picture for joetex @joetex

Just my opinion, but the headaches and bad vision sound more serious than watch and wait. I would think an MRI would be more definitive. Is it something to bring up with your neurologist or even get a second opinion? Mine was near the optic nerve and I was told it needed treating before my vision started getting affected.

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I hope you’re ok. The doctor was a neurosurgeon in Santa Fe. So I’m waiting for an appointment the Mayo.

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In reply to @mono21 "I know" + (show)
Profile picture for mono21 @mono21

It’s awful to just sit and wait. Thank you.

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Profile picture for joetex @joetex

Just my opinion, but the headaches and bad vision sound more serious than watch and wait. I would think an MRI would be more definitive. Is it something to bring up with your neurologist or even get a second opinion? Mine was near the optic nerve and I was told it needed treating before my vision started getting affected.

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Yes great advise. I’m waiting for an appointment at the Mayo. Hopefully I’ll get in fast. My Primary Care prescribed me Qulipta for the migraines. But with insurance they’re $200. My vision is horrible.
I hope all is going well for you.
Thank you!!

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Hello
I had a 4 cm meningioma I just had surgery to remove 6 weeks ago . I was told if it was 2 cm or less it would have been possible to get rid of it with radiation but 4 was too big. I would suggest you get scans at least every 6 months so the doctor can see if it is growing .. I found out I had the tumor when I asked for an MRI because I was getting frequent headaches but no other symptoms other then some fatigue but thought it was just tension .

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Profile picture for EES1 @ees1

Same boat except I'm 62. Wait and watch. Might grow. Might not. The uncertainty truly sucks.

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@ees1 I am surprised they are wait to do your surgery. I was diagnosed early September 2025. Had my MRI and was in for surgery by September 18, 2025. Mine was also calisified. Mine was on the left side. I did have some residual effects from the surgery. I have some lack of sensation on my right side, but the worst is with my right foot and leg. It is getting better with physical therapy. My pathology report came back as a grade 2. I will undergo radiation treatment. Remember most meningiomas are not cancerous. I am doing fine. I came out of the surgery feeling 100 percent better than when I had the tumor. They were not able to get it all because of the location of the tumor. Since it is a grade 2 it will come back, hence the radiation. All I know is that God has been good to me through this whole journey and the next phase of my journey that is to start after the 1st of the year. Talk to your neurologist about all your options.

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Please do your research on brain meningiomas. They are classified as grade 1, 2, and 3. Grade 3 is the most aggressive growing. If you are not having any symptoms I would recommend waiting and watching. If you start having any symptoms you need to get with your neurologist and have it removed. I was having symptoms for 3 years. I kept falling through the cracks. I started dragging my right foot, tripping and falling. Remember meningiomas are usually not cancerous. The treatment is to fix the symptoms, and prevent the tumor from returning. Please see the response to the below post I left. May God keep you in his arms and carry you through this journey.

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