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Scleroderma (Systemic Sclerosis): Anyone else?

Autoimmune Diseases | Last Active: Apr 6 1:56pm | Replies (27)

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@andielars25

Thank you for letting me know that CellCept has been working for you for 3+ years. I have definitely been living with a mindset that I don't have time for systemic sclerosis, or at least doing a great job of ignoring my symptoms, so I will try to continue that idea with any side effects from CellCept. What a great way to get through so many things. Congratulations on only having one more week of prednisone.

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Replies to "Thank you for letting me know that CellCept has been working for you for 3+ years...."

I was recently diagnosed with systemic scleroderma too. I have anti-centrome antibodies off the charts. I was also prescribed Cellcept but am scared of the side effects- including reactivation of past viral infections so have not picked up the prescription. I was able to get an appointment at the Stanford Scleroderma center in August. So far Raynaud's and telangiectasia on face and shoulders. My heart also has many preventricular contractions, but lung function still fine. Low Dose naltrexone reduced a super high hematocrit and the hand puffiness.