← Return to Scleroderma (Systemic Sclerosis): Anyone else?
DiscussionScleroderma (Systemic Sclerosis): Anyone else?
Autoimmune Diseases | Last Active: Apr 6 1:56pm | Replies (27)Comment receiving replies
Replies to "Thank you for letting me know that CellCept has been working for you for 3+ years...."
I was recently diagnosed with systemic scleroderma too. I have anti-centrome antibodies off the charts. I was also prescribed Cellcept but am scared of the side effects- including reactivation of past viral infections so have not picked up the prescription. I was able to get an appointment at the Stanford Scleroderma center in August. So far Raynaud's and telangiectasia on face and shoulders. My heart also has many preventricular contractions, but lung function still fine. Low Dose naltrexone reduced a super high hematocrit and the hand puffiness.