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Living with Neuroendocrine NETS, any advice?

Neuroendocrine Tumors (NETs) | Last Active: 4 days ago | Replies (111)
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@hopeful33250

Hello @cordelia73 and welcome to Mayo Connect.

No, I have not had any metastasis, just the carcinoids in the duodenum. Surgeries have been my only treatment.

How was your husband's NET diagnosed? Was he having symptoms that led to the diagnosis?

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Replies to "Hello @cordelia73 and welcome to Mayo Connect. No, I have not had any metastasis, just the..."
cordelia73 | @cordelia73 | Apr 7 7:38pm

Thanks for answering. My husband was diagnosed because he had an acute pain which took us to the ER thinking it was apendicitis, they did a CT and it all started. Then they did a small surgery to get Biopsys and he has one on the duodenum, two more in the peritoneal area and some in the Liver. They still haven't found the primary one, we are waiting on the appointments to start treatment

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cordelia73 | @cordelia73 | 4 days ago

Thanks for answering. He had accuse pain and we thought it was appendicitis, in the ER, after a CT they saw a mass and then it all started. The biopsy confirmed well diferientiated , grade 1 neuroendocrine neoplasm in four tumors in different parts. Waiting for the Pet Scan to know more.

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