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Would like to know the risks of BMT verses chemo.
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Apr 10 1:08pm | Replies (8)Comment receiving replies
Hi Lori,
Thanks for your quick response. I have read several of your posts and that is what encouraged me to get my doctor talking about the BMT again.
I agree that starting the process now while I’m feeling stronger is better than waiting for the V & V to stop working. I am a patient at Oschner New Orleans Cancer Center which is now an MD Anderson facility. My hematologist actually did his residency at MD Anderson Houston. He had a meeting with the transplant team and I am waiting to hear from them to discuss moving forward.
I appreciate the advice on the questions for the transplant team. If there is anything else you feel is pertinent to ask them please let me know. Any publications that you know of that I can access for questions would be appreciated.
You are an inspiration and I wanted to thank you for taking the time to help so many others. Congratulations on your great success and god bless you.
Lori
Replies to "Hi Lori, Thanks for your quick response. I have read several of your posts and that..."
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Hi Lori, When I was going through all the medical drama with AML and the transplant 6 years ago, I can guarantee you the last thing on my mind was being able to offer hope to anyone else going through the same issues. I didn’t have a mentor or know of a single soul who had endured the same adventures. It wasn’t until about 1.5 mo after the transplant that I felt the value of mentorship when I met two people briefly, who offered me encouragement, inspiration and above all, hope. So that’s why I’m here! We all need that dangling carrot. 😁
You’re in excellent hands at your cancer center with their connection to MDAnderson! Equally as reassuring to have your current hematologist a former resident from there! I hope you get the all clear to go ahead. Being stronger and healthy going into the BMT mission can really work in your favor, along with your obviously positive attitude!
Publications on BMT are numerous. But for now I’d really suggest not searching too much online. As with most anything, people tend to write about negative experiences. When in reality, while the first few months post BMT wouldn’t make the top ten list of enjoyment, the outcome is an opportunity for a 2nd chance at life. That alone can be worth the effort and potential risks.
Other questions, besides the previous suggestions:
~You might ask if you’ll be an in-patient or an outpatient for the transplant, where you’d remain near the clinic but convalesce offsite for a period of time.
~What is the length of time you’ll need to be near the clinic?
During a transplant consultation, the doctor would generally talk about finding a donor, (they do that for you) the protocol for transplant, the medication regimen, and expectations…yours and theirs.
For now, I’d wait to hear back from your doctor about the possibility of the transplant. The we can go over some of the information that you may have questions about.
Would you have to relocate for the transplant or do you live nearby?