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Scleroderma (Systemic Sclerosis): Anyone else?

Autoimmune Diseases | Last Active: Apr 6 1:56pm | Replies (27)

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@andielars25

I was diagnosed with systemic sclerosis 2000, but I had symptoms (Raynaud's, hardening and thickened areas that would come and go) since 1980. In 2000 my fingers and wrists started looking like puffy paws. That is when I was officially diagnosed. I raised a severely disabled son so pretty much ignored my own health for 20 years. I am no longer able to ignore the overwhelming fatigue, pain, joint stiffness and bowel issues. I just learned that my ANA numbers are over the readable limit at the rheumatologist's office that I just recently began seeing. I have been prescribed Cellcept, but I have not started taking it due to the very frightening potential side effects. I am vegan, try not to eat any sweets or processed food, exercise daily and try to eliminate stress, but I would love to hear what has worked for other people, and if anyone else has taken Cellcept for systemic sclerosis.

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Replies to "I was diagnosed with systemic sclerosis 2000, but I had symptoms (Raynaud's, hardening and thickened areas..."

@andielars25 I have been taking CellCept for 3+years for a different autoimmune disease, Clippers For at least 2years, i was taking the stronger form of cell cept (mychopenylate mofitil) but got diarrhea which cleared up when I was switched to a different type of cell cept (mycophenolic acid). I have not had any other side effects. It has been a great drug for me in that it will save me from prednisone. I am taking Rituximab since I only have 1 more week of prednisone.
Talk to your doctor. And have faith! Think of yourself as someone who doesn’t have time for all the nasty side effects!