Connect
← Return to Small nerve fiber neuropathy, severe head pressure and blurry vision
Discussion
Small nerve fiber neuropathy, severe head pressure and blurry vision
Brain & Nervous System | Last Active: Dec 14, 2025 | Replies (14)Comment receiving replies
I have ALS, I know totally different. I too, wonder if the two covid shots affected me somehow. I have headaches when I lay on my left side at night, laying awake for many hours. I also have restless leg syndrome and leg cramps adding to little sleep. My dr suggested gabapentin. I could not take the first suggested dose, so now experimenting with lesser amounts. I am 112 lbs. so any suggested dose? Not too much so all I want to do is sleep, but enough to stop rls. I recently read about a medication for ALS, seems it's been on market a while that was never mentioned Radicava supposed to slow progress 33%! Anyone ever hear of it!???
Replies to "I have ALS, I know totally different. I too, wonder if the two covid shots affected..."
@noteworthy
I can only add hope for RLS (I call mine restless limb syndrome, as it affects all of me) . Drug called pramipexole, in Canada also called Mirapex. Wonder worker.
Best to take at least 2 hours before bedtime. Tiny pills .25mg. I take 2 a night.
You'd have to work it out for you with your people, of course.
Connect
@noteworthy You might talk to a pharmacist about your weight and the gabapentin. I use the pharmacist for questions about things. They are pretty good. I think they might help with that. My regular Dr. who is a sitting Dr and doesn’t do anything else threw the names of 4 pills at me. I said no. I will take a pill if needed. But first I want to know why you are giving me the pill and how the medication will help. I had back surgery a bit ago and after awhile I had a hurtful pain. I went to the orthopedist and he recommended an injection. They forgot to tell me a few things. I made a trip to Texas and wondered why my BP was up to 140/80 when I woke up. I thought they gave me a steroid. Well I called a pharmacist and she said find out how much and what kind. I called the Doctors office and the girl said what it was and just for fun I asked her how long it could last. She said two weeks. The pharmacist looked it up in her book and told me 5 weeks. Crazy isn’t it. I use the pharmacist quite a bit. I can look stuff up but they have a lot of information. Just a suggestion.