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Tumor growth in three month follow up MRI

Neuroendocrine Tumors (NETs) | Last Active: 2 days ago | Replies (6)
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@splendrous

Thanks for sharing. Since your tumors were only showing slow growth what was the reason for changing to Lutathera treatments? How do you compare the two treatments side effects for you? Does you doctor say what would cause him to reconsider and perhaps change treatment? I am interested in at what would cause a reassessment of treatment. I had one doctor tell me 20% growth of te tumor would lead to reconsidering treatment. Thanks.

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Replies to "Thanks for sharing. Since your tumors were only showing slow growth what was the reason for..."
vinnie694 | @vinnie694 | 2 days ago

I believe, at a point every scan showed growth, on a few of the Tumors, then a PET scan showed them active.. most of the tumors had no growth.. At that time we talked about what would be my next step to stop the growth if possible.. we talked about Lutathera treatments, risks and success percentages. Then with the knowledge of the few that were growing, when would be a good time to go to the next phase.. We discussed it for a while, then decided I wasn’t going to wait until the tumors effected me functionally.. I guess as far as side effects I’ve been blessed, outside of being tired for a day and sometimes a little nausea, I’m fine.. And the results were good… I know deciding what to do next and when to start is stressful..

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