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DiscussionNeuropathy that comes and goes
Neuropathy | Last Active: 4 days ago | Replies (17)Comment receiving replies
Replies to "My husband has a similar issue with his left leg. If the PT person tells him..."
Hi,
Yes that is what I experience apart from the march instruction, I have not been instructed so don't actually know what would happen to me. Strange that it is the left leg with us both. I'm T2 diabetic which is not controlled as I'm intolerant of all medication including insulins so far, still trying to find something after 30 years of problems. I have had the MRI brain scan and been cleared of MS and Parkinson's, told I had menieres, which I can disprove as I have no hearing loss. I have uncontrolled sky high Blood pressure, elevated cholesterol, mild arthritis in the left hip, low Sella in the brain and damaged small veins in the brain, which is attributed to age. I had a flurry of TIA's, mini strokes, 15 over 3 days, at about the same time the walking problem appeared. I don't know if this is part of it or not. I had one occasion when I woke from an afternoon snooze and could not speak, had no concept of words and was left dumb for several minutes until the brain finally found the means. The same feeling as when I was paralysed.
After 2 weeks of getting my head around it all and not wanting to be reliant on others around me, I forced myself to walk using 2 walking sticks up a steep hill as I felt it was less distance to fall. More likely me just being me, stupid!
I'm strong willed, have good strength and mobility in my limbs for my age. I have had no medication or help for this one but have learnt to push through it when it happens. As luck has it I no longer fall, just stumble as my reactions to falling have improved enough to catch myself. On a bad day I will carry my walking stick just in case. Having vertigo has not helped my situation but again I have been able to manage it to where it does not impact me unless I'm not paying attention. I have to concentrate on walking as it is not always something that this body does automatically anymore. I can walk without much thought but that is aimless using the full width of a pathway. This is one of the issues Autonomic polyneuropathy does to me. Random symptoms keep hitting me daily but over a week they are consistantly zapping me. I have learnt to watch out for them and try and counter them, usually not very well!
I tend to wonder across the footpath when walking as if I'm drunk, something I have no answers for, the faster I walk the more steady I become. It would be true to say I become more focused as I walk faster, maybe concentration is the key that helps me cope, this is how I deal with the vertigo for driving, I have not time to do anything but what I'm trying to accomplish at the time.
I am relieved to know it is not just me that has this problem, not that I wish others to suffer this either. My wife is aware of the problems but I can't walk slow enough for her to walk with me. I usually walk ahead then stop and wait for her to catch me up.
I hope there are some ideas in this lot, a little longer than I wanted but felt I should outline my situation so you are aware of my circumstances that may or may not contribute to the problems I experience.
Last thought, I have periods that my lower body from the waist down feels like jelly, just happening to me this morning, yet again. I suspect it is the Neuropathy kicking off, unable to make a decision or unable to interpret the signals from the brain.
Cheers