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Neuropathy that comes and goes

Neuropathy | Last Active: 1 day ago | Replies (17)

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@cheyne

Hi,
I have a similar problem with my legs not doing what the brain tells them to do always. Particularly my left leg. The brain thinks the leg has moved but is hasn't and starts moving the right leg and over I would go. My brain has figured out to check the left leg has moved before moving the right leg. I had a really bad time trying to stand let alone walk initially around 18 months ago, but now the brain is quick to respond when I haven't taken the step as ordered. I have been able to hang up my walking sticks, for the moment. I'm 73 and have Autonomic polyneuropathy which is all the nerves affected which get or send corrupted signals to and from the brain. It doesn't always happen but enough to keep me on edge waiting for the next bout. The worst time I had I was being temporarily paralyzed while walking. I was left unable to step or move from the waist down. Fortunately both feet were on the ground but the right foot couldn't be moved for the next step, I couldn't even back up the left foot. I remember shuffling along prior but after was walked normally again. I shudder to think what might have happened had only one foot been on the ground. Felt like I was super glued to the floor. I now know to watch out for when I start shuffling as problems with my legs are close behind.
Cheers

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Replies to "Hi, I have a similar problem with my legs not doing what the brain tells them..."

My husband has a similar issue with his left leg. If the PT person tells him to "march" he can sometimes get the leg to move better. Weird. So what have you been doing/taking to help you with this. I will definitely ask about Autonomic Polyneuropathy but his walking seems to be fine for quite a few days and then it tanks where he can hardly walk. We have had good walking for maybe a week and then we are right back to needing a walker and even then he can fall or can't move (mostly his left leg).
Thanks for your information.