CRPS - anyone suffering with complex regional pain syndrome

I agree to NOT amputate as it might cause even worse symptoms, such as phantom limb pain, which in itself can be like CRPS, as there is pain where it shouldn’t.
It’s due to a trauma or accident, where the brain and the nerve connections don’t talk to each other , when the pain signal is sent to the brain, it then sends a signal back to the supposed painful area in error. There is a mis connect in the misfiring of nerves that aren’t responding correctly.
I had spinal fusion surgery 6 yrs ago, after surgery pain went away, I was left with nonstop, 24/7 nonstop pain in my Right big toe, where it feels like an inflated balloon is ready to pop, or it’s as if someone is standing on my foot 24/7. Even a bed sheet is so painful that I need a sheet lifter to sleep.
I’ve tried most every injection, acupuncture, PT, opioid pain meds. Nothing stops the pain. Gabapentum and Oxycodone provide limited relief. My life has completely changed due to this disease.
NORD- National Organization of Rare Diseases lists CRPS has listed this as a suicide condition due to its so difficult to diagnose and treat, which it can’t. For many we cope and find ways. Some can’t find a way so .....
I have found that MFR has helped change my condition and my life as it’s allowed me to begin to have some quality back to my daily living.
I will continue this discussion tomorrow.
Good luck and don’t give up. It could be worse !!

MFR?

I don’t take medication for CRPS; I have a Boston Scientific implant. Instead, I manage my condition with diet. I recommend watching Dr. Philip Getson’s videos on YouTube, as they were highly recommended to me by someone else on this blog. Pay particular attention to the diet section. Stop the Inflammatory foods. The main idea is to avoid anything that is white, such as sugar, flour, rice, and white salt. ( Yes, you will have a sugar withdrawal but it doesn't last long. Headache. I ate a small piece of candy each day for a week, then went every other day for the next week and then stopped completely. Additionally, avoid red meats. Omega 3 fish; chicken; turkey. Dr. Getson is very knowledgeable about vitamins and offers valuable insights on exercise as well. Also, steer clear of nightshade fruits and vegetables. I haven’t looked into his thinking about a nerve block but it is a thought, too. This man is a wealth of information. Good luck.

Hi, thank you, very helpful. Wondering if you could elaborate on the implant?? This is a new diagnosis to go with my plethora of others... lost & overwhelmed.. Thanks.