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@oopsiedaisy

It's definitely broken. Have you looked into generic Forteo (teriparatide)? If you've already mentioned this, I apologize - it's hard to keep track of everyone here. My insurance would only cover the generic version. It cost me $10 per month.

I was covered by the Tymlos co-pay assistance plan while I was on it otherwise the co-pay would have been $800 per month. I probably wouldn't have tried it in that case due to cost and also because I don't think the gains would have been worth it. Because I was on alendronate for so long, my gains would have been in the range of 30% to 60% lower based on comparison studies I've read.

One of the factors in my deciding not to continue with teriparatide was also the potential gain in BMD. I am not sure what difference it makes going from a lumbar T-score of -2.2 to -2.0 which is a 6% gain (typical gain seen in patients previously treated with alendronate that did a round of Forteo).

Edited to add: I'm hoping the combined six months I did manage to get through have had some kind of positive impact. At the very least they may have got me building new bone again after being suppressed for so long.

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Unfortunately, the generic is still thousands of dollars per month according to my insurance. And I would owe 60% of those thousands. Tymlos isn't covered at all but even if my doctor wrote for it, it would again be me paying 60% of a drug that costs thousands a month. Weirdly the only one my insurance will cover is Evenity because they bill it under my "out patient surgery" section of my insurance and not as a prescription med. I know everyone else wants to take Evenity, but with my side effect profile and how long it stays in the body, I don't want to take it. The people who get insomnia and don't sleep for several months on it are just a horror show to me. I can't risk my mental health. I have asked my endo to actually run all three through insurance just to see what the price comes out to be to make sure. But I haven't heard back from her yet. Fingers crossed that your six months got you good gains!!! And now, I have to get off the computer. I had vertigo last week and screens make the dizziness and nausea worse. It was a silly time to post but I was just so worked up about the whole thing, I so appreciate everyone who has weighed in and apologize if I've missed anyone. Being on the computer right now is very challenging.