Internal Vibrations-Small Fiber Neuropathy

@caligirl1
When did you start getting vibrations? Do you notice a trigger of the vibrations and do you have them all the time or for periods of time? Are you working with a neurologist with these new symptoms and did you get an updated MRI of your brain/spine and EMG/nerve conduction study of upper and lower limbs?

What treatments have you already tried? Have you tried taking any neuropathy support supplements like alpha Lipoic acid, magnesium and Acetyl l carnitine?
https://neurolaunch.com/internal-vibrations-buzzing-anxiety/

I started getting very minimal vibrations about 4 years ago after I had a pinched nerve in my neck, left arm, left hand were affected. Over the past 4 years, the vibrations were mostly at night, but now I can feel them during the day as well. They are now constant. The neurologist said he doesn’t know why or what is causing these vibrations. I did not get any updated tests since the initial diagnosis 4 years ago.
I have tried gabepentin, cymbalta, neurontin, but these medications have side effects that make me feel even worse. I tried Alpha lipoic acid and magnesium. These help a little bit. I have not tried acetyl carnetine.

@caligirl1
I also have small fiber neuropathy and what you describe in your neck/arm/hand sounds like you may have compression of your spinal cord/nerve roots. A neurologist can do an upper EMG/nerve conduction study and an orthopedic spine specialist can do a MRI of your cervical spine to see what it shows and options for treatment. Medication won’t help something that is a structural/mechanical issue in your spine.

@jyoung1963
Sorry, see my response above (sent to the wrong CaliGirl1). You may benefit from physical therapy, spinal injections (steroid for inflammation) and possibly cervical spine surgery if you have herniated discs/bone spurs/spinal cord or nerve root compression, etc.

Thank you, this is helpful information. I did have an EMG test and an MRI test 4 years ago, and a biopsy for small fiber neuropathy performed by the neurologist at that time. Should I request, or can I have these same tests repeated again? Or, are the results I received 4 years ago, the formal official diagnosis, and no further testing is needed? I’m worried that this small fiber neuropathy has or can turn into something worse. ( I could be wrong, I honestly don’t know much about small fiber neuropathy and what to expect.)

@jyoung1963
The small fiber neuropathy biopsy is the gold standard test and you don’t need to have another test. EMGs/nerve conduction studies and cervical spine MRIs can be done anytime a doctor needs new/updated information to help them diagnose and treat you, especially as your symptoms evolve/change over time. I have had EMGs 2017, 2019, 2024 and 2025 and had cervical MRIs 2017, 2019, 2022, 2023, and 2024. I may need an updated MRI in 2025 before my surgery.

Small fiber neuropathy can affect a lot and cause many symptoms. It affects sensory and autonomic nervous system. It is important to keep an eye on bloodwork for glucose levels, A1C, vitamin deficiencies or toxicities, eliminate alcohol/toxin exposures, etc. to prevent worsening. It is also good to make sure iron levels and oxygen levels are good and you get exercise to ensure good circulation.

1. https://my.clevelandclinic.org/health/diseases/17479-small-fiber-neuropathy
2. https://www.hopkinsmedicine.org/neurology-neurosurgery/specialty-areas/peripheral-nerve/small-fiber-sensory-neuropathy
3. https://www.healthline.com/health/small-fiber-neuropathy
4. https://www.health.harvard.edu/diseases-and-conditions/the-big-pain-of-small-fiber-neuropathy
5. https://www.mayoclinic.org/diseases-conditions/peripheral-neuropathy/diagnosis-treatment/drc-20352067
6. https://ce.mayo.edu/sites/default/files/media/2023-10/16-Rubin_PeripheralNeuropathyNEW_7-12-23.pdf

Thank you very much for all this information, and for the links you have posted. I really appreciate it, it is very helpful to me. I will review and study everything. You are very knowledgeable. I hope your surgery is successful, and wish you good health.
Have a blessed day.

I TOO HAVE BUBBLING THROUGHOUT MY BODY, POST CHEMO THERAPY FOR HODGKIN'S LYMPHOMA
VERY BOTHERSOME. I WISH THERE WOULD BE SOMETHING ON THE MARKET TO EASE THIS. ANYONE KNOW WHAT WORKS????

Hi, je suis egalement atteinte de vibrations, brûlures, décharges électriques.
Je suis Française et soignée en France. Ma Neurologue m’a prescrit une pommade (je ne suis pas sûre d’avoir le droit de mentionner les ingrédients) mais ça n’est pas du CBD.
Je garde cette pommade au froid. En cas de fortes douleurs j’en mets et ça m’aide. On m’a prescrit egalement des Patchs (que je garde aussi au froid)
Pour les fortes douleurs qui sont très difficiles à gérer j’ai un traitement par voie orale

Be careful taking any supplements, ask your neurologist first. I had been taking some but my new neurologist told me to stop saying that it's a waste of money. I am on Nortripyline for 8 months and now I have a minimum deficit, no pain just some numbness in my toes and fingers.