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@katgirl

I'm sorry the side effects were bad. I wish I could try either of those, though! Just because you can discontinue them so fast. I can't afford either of them with my insurance currently. Maybe another way the universe is telling me to wait. Or the universe is telling me the healthcare system in America is broken 🙁

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Replies to "I'm sorry the side effects were bad. I wish I could try either of those, though!..."

It's definitely broken. Have you looked into generic Forteo (teriparatide)? If you've already mentioned this, I apologize - it's hard to keep track of everyone here. My insurance would only cover the generic version. It cost me $10 per month.

I was covered by the Tymlos co-pay assistance plan while I was on it otherwise the co-pay would have been $800 per month. I probably wouldn't have tried it in that case due to cost and also because I don't think the gains would have been worth it. Because I was on alendronate for so long, my gains would have been in the range of 30% to 60% lower based on comparison studies I've read.

One of the factors in my deciding not to continue with teriparatide was also the potential gain in BMD. I am not sure what difference it makes going from a lumbar T-score of -2.2 to -2.0 which is a 6% gain (typical gain seen in patients previously treated with alendronate that did a round of Forteo).

Edited to add: I'm hoping the combined six months I did manage to get through have had some kind of positive impact. At the very least they may have got me building new bone again after being suppressed for so long.