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Support for caregivers: I feel helpless not being able to fix things
Pancreatic Cancer | Last Active: Apr 20 5:25pm | Replies (43)Comment receiving replies
My husband who has stage 4b prostate cancer is the same. He just had his 4th chemo infusion and his mouth is so tender today, he found the scrambled eggs too salty even though he loved them yesterday.
We are both 76, and we thought we would have a long life together, traveling and enjoying watching our grandchildren friends up. With uncertain future, we are trying to enjoy everyday we do have together - and our family, like yours, has gotten closer together
Replies to "My husband who has stage 4b prostate cancer is the same. He just had his 4th..."
The nurses in the infusion room told my husband to rinse with water/baking soda/salt to help prevent the mouth sores and that has worked for him. I put about 1/4 tsp of baking soda and salt in a cup of water.
Like you... we're only 71 and were very active kayakers/hikers and I thought we'd be doing that for another decade at least. Trying to find other ways to spend time together, though he is finding walking difficult now. We just ordered a mobility scooter that hopefully as nice weather arrives we will be able to get outside with that.
Better than the awful and expensive "magic mouthwash" is to try drinking a double "shot glass" of buttermilk daily. Wait 20 minutes before drinking anything else. My oncologist recommended the buttermilk. It works! & No, I am not a fan of the taste, but it is better than a sore mouth.
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https://www.mayoclinic.org/tests-procedures/chemotherapy/expert-answers/magic-mouthwash/faq-20058071
The "magic mouthwash" in that link was effective, if used 4 times a day, on the terrible mouth sores I suffered from due to chemo. You'll have to have your Dr. call it in to a compounding pharmacy that can mix it up for you. It's perishable and must be kept in your 'fridge. And I agree on the Boost supplement. It won't cause the mouth sore pain to flare. Hope this helps.