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DiscussionWas it difficult to determine if your paraganglioma was active?
Neuroendocrine Tumors (NETs) | Last Active: Apr 5 9:48am | Replies (14)Comment receiving replies
Replies to "@colleenyoung Hi Colleen, Thanks so much for reaching out. My surgery has been delayed for three..."
So good to hear from you, @fas ! Am sure it was a bummer to have your 'eviction of the trespasser' delayed. My flight to Rochester is at the same timeframe as your surgery; will be having the CT scan to see how my tumor has changed, the same day you are scheduled for surgery. Thank you for sharing the name of your surgeon; my triage team of drs at Rochester are Dr Bancos--endocrinologist, Dr Link--vascular neurosurgeon, Dr Moore--head & neck surgeon. I definitely will be telling them about the striking match-up of all your & my symptoms, right down to your left nostril dripping and my right one dripping, w your carotid tumor on the left and mine on the right! Wishing you calmness in the interim, and thinking and praying for you and your family everyday.🥰