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I had a grade 2 meningioma and the neurosurgeon referred me to the radiation oncologist, who decided that “I could do more harm than good” and 8 years later the MRI’s are still clean. But from something else that he said, I think the radiation oncologist might have decided differently if they had had the proton therapy equipment. (The center was waiting for the newest equipment to be installed. )
Replies to "I had a grade 2 meningioma and the neurosurgeon referred me to the radiation oncologist, who..."
Three months ago I had a 6”+ frontal lobe atypical meningioma removed via craniotomy. Surgery was successful, 100% of visible tumor was removed. I too had a consult with the radiation oncologist. His opinion was basically no opinion; I could have the radiation treatment or not. I have read on this site and other sites of the potential side effects. Because the tumor was in the frontal lobe, there is risk of radiation caused long term permanent damage including cognitive decline, memory loss, and behavioral changes. Your post is encouraging me to take a wait and see approach. If I wait and monitor with periodic MRI and the tumor comes back, it will get treated then hopefully with gamma knife. Based on my age (67) this seems logical. It could take years for the tumor to regrow, in which case I’ll be approaching natural life span anyway. Does this make sense? I’m getting a second opinion from another radiation oncologist, and the next MRI is in July.
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i think it all depends on the size and rate of growth!