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Profile picture for thereselefever @thereselefever

OMG!! I was diagnosed with PMR two years ago. I think I probably had symptoms way earlier, but two years ago was hospitalized for a week.

However, 20 years ago I was having what you have just described. I had neurological, muscular, heart, blood - every kind of test imaginable, and they never found out what was causing it. And, I have never heard of this happening to anyone else. But now that there is you, I am wondering too, are they related at all?

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Replies to "OMG!! I was diagnosed with PMR two years ago. I think I probably had symptoms way..."

I'm sorry I'm late in responding to your post. For some reason I don't get email notifications when someone replies to my posts so I can easily miss them.

When you say that you've never heard of this happening to anyone else, we're you referring to the actual video clips of the boxers struggling to get off the canvas and back on their feet again? Does this happen to you too? It happens to me exactly like that almost every day. In the beginning with no precursor of pain but now I do have a lot of pain in addition.

At times I'm really mentally confused and can stay like that for hours. It feels like I've had a stroke or a seizure or Parkinson's disease (which my twin brother has). That's how it started 13 years ago and it is still happening. Awful thing to experience. And you're saying you have the same problem?

I've actually just replied to your own post on hip and back pain. Hope my reply helps.
Frank