18 month update. How am I doing?

Posted by eldorado80 @eldorado80, 5 days ago

18 months now. How am I doing?

Background: age 81, hgt 6', 200 #, moderately active. No diet. Just common sense practicing moderation. Non smoker, light drinker.
Original PSA was 14.7, biopsy was 11/12 positive, Gleason score 8, thus intermediate high risk.
20 EBRT sessions and one 45mg Lupron Depot injection treatment concluded 18 mo. ago. Original after treatment readings were PSA < 0.1, testosterone < 21. Def: Lupron Depot reduces male testosterone thus eliminating it from feeding the cancer. You get to experience the female side of your personality. haha
Post treatment side effects experienced included lower pulse rate (Bradycardia), libido loss and some shrinkage, body hair loss, man boobs, and “back door plumbing” issues. The only “front door” plumbing issue is the same frequent urination experienced by many seniors and not related to this treatment. The first five side effects I relate to the injection.
18 mo. Lab results just in today! PSA 0.2, (very good) testosterone 673 (very good) range is 240-899.
Side effects: Lower pulse persists (28-35 bpm) yet has not been a problem. I am happy to say sex as an option is back on the table and quite acceptable for my age. Still experiencing body hair loss and man boobs. Plumbing issue still persists. Over time I have adjusted to the side effects by modifying my lifestyle slightly. In closing, I prefer not to comment on any kind of a recommendation. I've found that each case, individual experience and life situation is unique to that person and loved ones. If you find this post of value please say so. It helps me decide if I should do a 2 year post in 6 months. It also helps the other readers who may be considering posting. Live well!

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

@eldorado80 Thank you for this update. .My own radiation treatment starts on April. I hope that in 18 months, I can share my own experience. Your post is encouraging and helpful to me.

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My radiation treatment starts on April 9. Five treatments (SBRT) ending on April 21.

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I'd say your doing very well!! I'm impressed/amazed at how quickly your Testosterone came back at 81.
My recovery at 63 is going a little slower, I was on Orgovyx for 2 years.
Date Total T Free T
06/03/24 3 0.8
11/09/24 82 2
02/28/25 192 3.5

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If your pulse was. 28-35 you d be passing out- ??

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Out of curiosity, what's your blood pressure?

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@eldorado80, first, thank you for posting! It is very helpful! It sounds like you feel you are doing quite well and that news boosts others!
Secondly, if your pulse is really 28-35, that certainly falls in the range of bradycardia. I too have a resting rate of 40-45 BPM and have for 45 years. Apparently, it dips into the upper 30's when I sleep. I was a distance runner for 4 decades. I got used to the look on nurses faces when they would take my vitals for the first time. Many times they would quietly exit and an attending physician would appear shortly thereafter! My cardiologist had me wear a holter monitor for 3 days just to make sure I didn't have any more serious heart rhythm problems.
I think its very reassuring to others that you have managed the side effects of your treatment and are enjoying life!
Might I ask you to contribute a bit of additional information to help others understand your lower heart rate as it might relate to your successful prostate cancer treatment?
-Am I correct that your had a 6 month course of Lupron ending 18 months ago?
-Do you remember what your blood pressure readings were before your prostate cancer treatment? Do you ascribe your low heart rate to your prostate cancer treatment or were you kind of like me in that you had a lower than normal heart rate before prostate cancer treatment?
-Are you on any other medications that might reduce your heart rate, like beta-blockers?
-Do you have any other symptoms symptoms, like dizziness upon rising quickly, or an irregular heartbeat? That was what my cardiologist was concerned about and why he had me wear a holter monitor. There was one, an elongated QT segment, he wanted to rule out. Fortunately, he did rule it out.
Thank you for posting! It's really helpful for PCa patients like me to read reports of men who are further down the road of treatment than I. It helps me understand the process and gives me hope!

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@vircet

@eldorado80 Thank you for this update. .My own radiation treatment starts on April. I hope that in 18 months, I can share my own experience. Your post is encouraging and helpful to me.

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Thank you and best wishes for your treatment.

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@callibaetis

Out of curiosity, what's your blood pressure?

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BP is typically 120-130/70. I take low dose Losartan (25mg) to control it.
Best wishes,

Dave

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@ecurb

If your pulse was. 28-35 you d be passing out- ??

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You would think so but have never even felt light headed. I found it myself when checking blood pressure at home. My doctor sent me to Emergency, lots of tests and cardiologist recommended a Pacemaker (the normal response to Bradycardia). Having never felt any symptoms I refused. As of July 18 it will be 2 years since I received the injection that caused this. I must admit, if I did experience the onset of light headedness/fainting I would revisit the pacemaker. Best wishes, Dave

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@web265

I'd say your doing very well!! I'm impressed/amazed at how quickly your Testosterone came back at 81.
My recovery at 63 is going a little slower, I was on Orgovyx for 2 years.
Date Total T Free T
06/03/24 3 0.8
11/09/24 82 2
02/28/25 192 3.5

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Thank you. You seem to be heading in the right direction. One thing that may have helped with the increase in T is that I fast walk 3+ miles every day (weather permitting).
Regards,
Dave

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