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@dlydailyhope

@jordanametepe
How old are you and how long have you had these symptoms?

Did you have an accident where you believe you now have a csf leak? What do you think would have caused a csf leak?

Did the ENT put a camera down your nose? Do you know why they prescribed you an antibiotic? That could have caused some of your new gastrointestinal issues. What were you told about why you have fluid draining from ears and nose?

Did your neurologist do an EMG/nerve conduction study of upper/lower limbs? A small fiber neuropathy skin punch biopsy and neuropathy blood panel?

Have you seen an endocrinologist to check thyroid/hormones and to see if prediabetic or diabetic?

Have you had MRIs of your spine?

Have you had a full iron panel to check iron levels?

Did you have Covid or the mRNA shots?

Do you have all of your imaging and bloodwork results and have you reviewed them in detail? Does anything show up as abnormal? What were all of the diagnoses and impressions?

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Replies to "@jordanametepe How old are you and how long have you had these symptoms? Did you have..."

I’m 25 years old, the headaches started at least 5+ years ago. The majority of the other symptoms about 1+ year ago. I’ve had a metallic taste in my mouth going back to my teenage years. ENT specialist performed a laryngoscopy to visualize my throat and sinuses. The findings looked normal despite he mentioned some boggy fluid in the back of my throat, didn’t seem to be a concern. Every provider I’ve told about the fluid draining from my nose and throat doesn’t to be concerned about the abnormality of that. Thyroid and hormones have been checked many times, which are within normal range. With my current Neurologist we did do an EMG, which was normal. I’ve had one MRI of my spine (without contrast) it came back normal with no suspicion of a leak. Also, a few MRI’s with contrast of the brain which was normal. Iron levels are good, I did have Covid years ago but I recovered fully so I don’t think that’s the issue. The only things that were abnormal was an elevated Creatine Kinase enzymes level (CK), Which suggested recent muscle damage and a low Red blood Cell count (RBC). Neither were too high or low, just slightly out of what’s considered the normal range. I’m not sure what would’ve caused the leak. I mean we’re all human, I’m sure there could been a time I hit my head or injured my back at some point over the years without thinking about it being anything serious. Spontaneous leaks occur too. I’ve been very open to other possibilities too and not trying to just limit this one diagnosis. But things don’t seem to be getting better and a lot of other things have already been ruled out. I’ll continue to keep faith that things will get better. God is great and I know he’ll make a way when there seems to be none.