@jordanametepe Hello and welcome to Connect. I know this is frustrating to not have a diagnosis for your symptoms. There are discussions here about CSF leaks, and typically they come after spine surgeries or a diagnostic test that may puncture the dural covering over the brain and spinal canal. From what patients say about them, the symptoms change if position changes such as laying down or standing up.

I think you may have better success, if you were to see a functional medicine specialist or environmental allergist. Those doctors look for causes and try to fine tune things to diminish inflammation, and they tend not to prescribe a lot of medication, and instead promote healthy living, and perhaps customized allergy treatments.

A couple sites where you can search for these types of doctors are Forum Health, https://forumhealth.com/ or
the American Academy of Environmental Medicine https://www.aaemonline.org/

If you have had injuries or physical trauma, perhaps a whiplash, there could be reasons for muscle spasms in the neck or shoulders. If spasms are moving or turning vertebrae, it may cause some of those symptoms such as dizziness face tingling, vertigo, head aches and nausea. A lot of symptoms can have multiple possible causes.

I have a lot of allergies, and I had an injury to my neck that years down the road resulted in spine surgery. I also have thoracic outlet syndrome that causes neck tightness and compression of nerves in my shoulder. If you have had Covid, that can cause a loss of smell.

I can understand why doctors are not accepting a CSF leak because your symptoms could have multiple possible causes, and if there is no history of something that may cause it, why would they look for it? A CSF leak is a serious business to treat and they don't want to put you through a difficult procedure if it's not warranted. If this information isn't what you need, please understand that in diagnosing and trouble shooting problems, you need to be objective and consider things that perhaps hadn't been considered before or eliminated from possible causes. Specialists only really consider what their specialty is about.

You may also be interested in this new group for headaches and migraines https://connect.mayoclinic.org/group/headache-migraine/