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DiscussionCan you take tymlos and prolia
Osteoporosis & Bone Health | Last Active: Apr 3 10:08am | Replies (46)Comment receiving replies
Replies to "Please please please read up on stopping prolia. Many many people have had compression fractures from..."
@burrells5, thank you very much for sharing your personal story! For sure it will help someone who reads it.
It is disturbing to say the very least that the lack of standard care still exists involving a powerful drug such as prolia. Minimally, any patients who receive prolia injection should be forewarned the danger of delaying a dose, especially when quitting altogether. Many unforeseen scenarios could occur - insurance changes, doctors leaving practices, dosing scheduling troubles (man-made or during natural disasters), and newly emerging adverse effects/disease states which can prevent someone from getting more doses of prolia. One mishap could alter someone's life forever.
I admire your strength and resilience. My heart and prayers are with you.
Unfortunately, I am in the process of being tested for Osteocronosis of the jaw from Prolia. If I do have this awful disease the only medicine I can take is Tymlos or Forteo. The other meds will do more harm to my jaw. If you’re not aware of what this is read up on it it’s devastating. I am already in a lot of pain from it and can’t cause more damage. I’m pretty much between a rock and a hard place. My drs are very aware of the rebound effect from Tymlos going off Prolia and explained it to me. I’m off Prolia for 3 months now and they’re bringing me in for another bone density to see if I can wait any longer to start something. I am going to mention to my Rheumatologist about the CTX Blood Markers and see if I can have that test too. I live in Miami and I’m of the age that I’m on Medicare so I don’t have the expense that you encountered. I’m so sorry for everything you’ve been through. I did read the info regarding Prolia and they mentioned about a 4% chance of this Osteocronosis especially in cancer patients, which I am not. I never had any issues and now this is mind blowing. I have a girlfriend that went off with no problems. I hope I’m one of the few lucky ones. Good luck to you as well.