@kawred: hi! I wish I would have found answers sooner. I don’t mean to alarm you, but feel you should learn my story to help you be persistent in your medical decisions. Your symptoms of multiple cysts are similar to my medical journey. I’ve been seen by many specialists and oncology consultants seeking a reasonable resolution to these cysts (liver, kidney, gallbladder, etc) which result in MD reply to me “some people are suspect for multiple cysts. All the MD’s said “There is no cure. Just live your life”.
Then when I started to have uncontrollable diarrhea for two years I sought solution! After multiple normal tests and unsuccessful medications, I finally got CT scan revealing abnormalities that led me to a good gastroenterologist. He performed endoscopy and took several biopsies. One of the biopsy locations near the small intestine/duodenum was suspicious and the biopsy revealed Neuroendocrine Carcinoma Tumor Cancer (NET); even 2nd opinion from Pathologists revealed same diagnosis! The formations thought to be cysts in my liver were also identified to be NET that had metastasized from the small intestine primary tumor. This was three years ago.
I have successfully received treatments that have reduced tumor size and I have a pretty good quality of life today. NET has usually very slow progression and there are many treatments available to relieve symptoms. Oncologists specializing in NET have some remarkable treatment solutions to control tumor stability.
I tell you my saga so you won’t be satisfied with the “not to worry” medical suggestion about cysts. If I would have gone to gastroenterologist for endoscopy sooner perhaps I could have alleviated liver metastasis and been able to have the primary tumor successfully surgically removed.
Too late for me… but you can be smarter and more informed than me. I wish you a long, healthy life! I hope your cysts are just fluid filled sacs that resolve on their own and cause you no trouble.
If I can be of help in future please reach out to me. Bette (dbamos1945)