Anyone here dealing with peripheral neuropathy?

Posted by rabbit10 @rabbit10, Apr 9, 2016

Anyone here dealing with peripheral neuropathy?

Interested in more discussions like this? Go to the Neuropathy Support Group.

Ozone therapy sounds strange. It will neutralize “toxins” inside your home or odor from a burned casserole, but that’s about it. It can be harmful to the linings of your lungs in high concentrations. I’ve had one or two ozone generators in my home for 20 years. Be careful…

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@wbmillis

I was diagnosed with peripheral neuropathy in the last 12 months by a neurologist. He indicated about the only thing that could help me with gabapentin, which I refuse to take. I'm 76 years old and especially after going to bed at night, primarily my left leg, and foot get very hot and feel numb. One of my daughters who is a doctor, DC, has told me about something called ozone therapy. Is anyone here familiar with us as a possible treatment for peripheral neuropathy.

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Ozone Therapy. If you find anything about this let me know. I’m in AZ and MI

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I was on Gabapentin with Cymbalta which is supposed to have a synergistic effect with the Gabapentin. I am currently taking Lyrica and Cymbalta with much better results.

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Very much so". I started getting the shingles in 2017. Lost track, but had about 12 to 13 separate outbreaks. By about outbreak #7 I had the dreaded post herpetic neuralgia. It's more painful than having children. I tried all the standard meds and not standard medication. Creams, oils, spinal cord stimulator, acupuncture, calmare therapy, diet change, one neurectomy and trying to figure out how to get the second. PHN is life altering. I can't sit or where much in clothes. The ultra sensitive skin is nuts. I was also diagnosed with Complex Regional Pain Syndrome CRPS. Pain from where I had the nerve damage from the shingles, has moved to my upper back and to left side, thus the CRPS. I'm nearing year 8 and although there are days when I say forget it, no use in trying anything else and then I remember my life before the shingles and I keep trying. That is why I want to get another neurectomy. I'm glad you have found something that helps you. I'm also in the Facebook Group for PHN sufferers. It's a great way to share with others that fully understand this condition. Write whoever you like. I am here. ❤️

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@fmmartinez58

Very much so". I started getting the shingles in 2017. Lost track, but had about 12 to 13 separate outbreaks. By about outbreak #7 I had the dreaded post herpetic neuralgia. It's more painful than having children. I tried all the standard meds and not standard medication. Creams, oils, spinal cord stimulator, acupuncture, calmare therapy, diet change, one neurectomy and trying to figure out how to get the second. PHN is life altering. I can't sit or where much in clothes. The ultra sensitive skin is nuts. I was also diagnosed with Complex Regional Pain Syndrome CRPS. Pain from where I had the nerve damage from the shingles, has moved to my upper back and to left side, thus the CRPS. I'm nearing year 8 and although there are days when I say forget it, no use in trying anything else and then I remember my life before the shingles and I keep trying. That is why I want to get another neurectomy. I'm glad you have found something that helps you. I'm also in the Facebook Group for PHN sufferers. It's a great way to share with others that fully understand this condition. Write whoever you like. I am here. ❤️

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I also had shingles around 2012-15 I have lost track. I had it in my left foot. I didn't break out. Dr. put me on gabapention. That didn't work and I ended up in the hospital for 5 days. I still have pain in that foot and leg and I now have peripheral Neuropathy along with it. I still get the stabbing pain in the foot and I don't know if it is the shingles or the neuropathy. Not pleasent.

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@gramham

I also had shingles around 2012-15 I have lost track. I had it in my left foot. I didn't break out. Dr. put me on gabapention. That didn't work and I ended up in the hospital for 5 days. I still have pain in that foot and leg and I now have peripheral Neuropathy along with it. I still get the stabbing pain in the foot and I don't know if it is the shingles or the neuropathy. Not pleasent.

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It's not pleasant at all. Many in the group have had internal shingles. It's difficult to get a proper diagnosis.

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My peripheral neuropathy has morphed into polyneuropathy, traveling from my lower extremities to my upper extremities. Currently in pt for strengthening and balance, but plan to start dry needling as part of my pt.
Has anyone used dry needling as a option to energize muscles/nerves?

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@binh

My peripheral neuropathy has morphed into polyneuropathy, traveling from my lower extremities to my upper extremities. Currently in pt for strengthening and balance, but plan to start dry needling as part of my pt.
Has anyone used dry needling as a option to energize muscles/nerves?

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Hi @binh, There are quite a few discussions in different groups about dry needling if you want to scan through them to learn what others have shared - https://connect.mayoclinic.org/search/discussions/?search=dry%20needling

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@aliskahan

Hi @rabbit10 and welcome to Connect! I want to connect you with @martid, and @grandma41 who have both recently written about peripheral neuropathy. They both had different causes of their diagnosis and can discuss their experiences with you.

How long have you been dealing with peripheral neuropathy?

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I've had it since 2008. It gets worse as time passes. I was 50 when it started, I'm 64 now and can barely walk. The pain is unbearable at times. Every single day I get around 3 attacks, these are seriously mind blowing pain attacks! From the tips of my fingers to the tips of my toes! It's truly the worst pain I've ever felt!
I wish to die every second of my life!

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@cavtanker

I've had it since 2008. It gets worse as time passes. I was 50 when it started, I'm 64 now and can barely walk. The pain is unbearable at times. Every single day I get around 3 attacks, these are seriously mind blowing pain attacks! From the tips of my fingers to the tips of my toes! It's truly the worst pain I've ever felt!
I wish to die every second of my life!

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I know exactly how you feel.
I’ve been dealing with this for 12years now, and Mr feet hurt so badly I cannot walk on them.
I’ve had several really bad episodes of pain that sent me to the hospital.
Nothing helped me and last one was in my ankles.
The pain stabbed me every second it seemed.
It lasted for 5 hrs and then I just couldn’t stand it anymore.
I also have days where I’ve had enough,so I know what you’re going thru.
The thing is is that I never know when I’ll be hit with a stabbing pain attack.
There’s not one day that passes,that I am pain free.
It really stinks!
I’m sorry for you and I hope you find some relief.😮‍💨

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