I was on vyvgart for 4 weeks and in those four weeks went from weak to weeker in my legs, my CIDP symptoms flared up dramatically. I lost the ability to walk, my vision doubled and my hands became numb and I was unable to hold anything.
I ended up in the hospital getting Mega doses of IVIG over a 5-day period. I am now in Post Acute learning to walk all over again and hopefully we'll get to use my hands to hold things with little feeling. My eye muscles were weakened and my ophthalmologist said that my eye muscles are the most delicate of our muscles. He also said that two things are working together to keep the eyes from having double vision, Fusion and the eye muscle. The eye muscle this weekend greatly because of the medicine and maybe some cognitive issues as well. So for me, the new medicine affected me negatively in multiple ways. I have been taken off of the vivgart and him back on the immunoglobin that I was on prior to starting the Vyvgart.
Learning to walk all over again and regain my balance along with my eyesight you're not something that I wanted to do at 70. I wish I could give some positive feedback because I really was hoping that the new medicine would mean Better Health, but the exact opposite happened. So I would just say to anyone who is thinking of using this new medicine to research the ingredients carefully to make sure you don't have an allergic reaction and end up with the same muscular, neomuscular challenges that I have right now. I hope this helps.