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Worried this might be anal cancer
Colorectal Cancer | Last Active: Apr 3 1:53am | Replies (104)Comment receiving replies
Katme, I had 2 lymph nodes affected and that put me at stage 3.
Proton radiation only affected my tail bone. The radiation stopped before it could it could get to my pelvic bone. I was quite concerned about my bones since I have osteoporosis. Was assured that tail bone would be the only bone they had to go through (has to get to tumor somehow) but you can live quite well with a broken tailbone, but a broken pelvis…..no thanks.
Btw, tail bone is just fine.
Lana67, the SD proton center is affiliated with USSD medical. You can use an oncologist from there or, as I did, a Scrips doctor that was recommended to me. They will want you to have an oncologist even if you don’t take chemo. I did chemo for a little over a week. Didn’t like it so I quit. My oncologist was very understanding.
I also recommend asking for hydration infusions. Huge difference in how you feel. Both radiation and chemo cause diarrhea so infusions keep you somewhat normal.
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Thank you samclembeau! It’s good to hear that pelvic bones were spared. I also have osteoporosis, especially spine. Also appreciate hydration tip. My affected lymph nodes are in distant pelvic locations so they have an “m” categorization (likely signifies metastasis) which puts diagnosis at stage 3b or 4 according to various cancer websites. I think chemo will be mandatory for me because of metastasis. You mentioned that your proton center Dr said anal cancer was his favorite to treat. Can you share his name? I understand that anal cancer is rare, so it would be nice to work with someone experienced. Thanks again for sharing info.