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Life while being treated

MAC & Bronchiectasis | Last Active: 3 days ago | Replies (51)

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@helenrivera

Thank you. I started watching some u-tube videos after my RT advised I probably need a LT. I then asked my MD if there was a Transplant unit, I insisted on a referral. That doctor at Kaiser (different location) was the best. She took an hour going through all my old scans and showed me how I progressed throughout and was disappointed I did not have a biopsy or referred sooner. If I had waited any longer I would not be here as she gave me 1 year to live. I was up to 15 liters of o2, using a w/c and wrote out my last wishes and left all in order for my family. Our Lord is Great and right now that you can advocate for yourself ask to see a transplant specialist and let them tell you yes or no. All transplant patients have other issues we face, but nothing compares to what I have gained. I am very grateful and blessed to be involved in my donors family life as we connected and visit each other🙏🙏❤️❤️

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Replies to "Thank you. I started watching some u-tube videos after my RT advised I probably need a..."

Glad the RT spoke up and advised you, as well as what you did in research, and then your MD giving you the referral. As we must do, you did, speak up.
How nice to be involved with the donors family.
Barbara