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Severe Tortuous & Redundant Colon

Digestive Health | Last Active: 1 day ago | Replies (103)
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@julsnealey

I am still the same. I suffer from this daily and do not foresee that changing any time soon. I believe if you don't fit into a nice little package of symptoms for the more commonly known digestive issues you are simply lumped into an IBS/IBD category and sent on your way. Quality of life is an issue, but I don't see any change with this. I have given myself a mental break from trying to figure out an answer, as it was making me depressed. Its sad, frustrating and painful on all fronts. I would love to find an answer, I hope we can find one soon.

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Replies to "I am still the same. I suffer from this daily and do not foresee that changing..."
Lisa Lucier, Moderator | @lisalucier | 2 days ago

Hi, @julsnealey - I am sorry to hear you are still the same and suffer daily from this. I commend you for giving yourself a mental break from trying to figure out an answer.

I found out I have a tortuous colon in my first colonoscopy about a year and a half ago. I was not familiar with this condition, so wondered how my colon could have caused anyone a lot of trouble or torture. 🙂 That, or I thought that the post-colonoscopy report might have a misplaced or misspelled word.

I also learned after the colonoscopy that the GI fellow (trainee) doing my procedure struggled performing it due to the tortuosity, and the staff GI doctor had to take over. I did not receive any information about this being a potential problem in the future with gastrointestinal symptoms.

In your situation, julsnealey, what did you and your doctor think would be the pros and cons for you of having a colectomy at some point?

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