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Life while being treated

MAC & Bronchiectasis | Last Active: 4 days ago | Replies (51)

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@blm1007blm1007

Who approved you for the Double Lung Transplant if the pulmonologist and internal medicine doctor said "not a candidate". Very interesting. Just goes to show you, don't give up in getting answers and results.
Glad you are 'now living my best life". Wonderful, one year since the operation.
Let us know every so often how you are doing.
Barbara

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Replies to "Who approved you for the Double Lung Transplant if the pulmonologist and internal medicine doctor said..."

Thank you. I started watching some u-tube videos after my RT advised I probably need a LT. I then asked my MD if there was a Transplant unit, I insisted on a referral. That doctor at Kaiser (different location) was the best. She took an hour going through all my old scans and showed me how I progressed throughout and was disappointed I did not have a biopsy or referred sooner. If I had waited any longer I would not be here as she gave me 1 year to live. I was up to 15 liters of o2, using a w/c and wrote out my last wishes and left all in order for my family. Our Lord is Great and right now that you can advocate for yourself ask to see a transplant specialist and let them tell you yes or no. All transplant patients have other issues we face, but nothing compares to what I have gained. I am very grateful and blessed to be involved in my donors family life as we connected and visit each other🙏🙏❤️❤️