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Pelvic Floor muscle training post-prostatectomy

Prostate Cancer | Last Active: Apr 5 8:35am | Replies (19)

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@edinmaryland

1. sometimes the burning irritation at the end of the penis is blood, it may be very faint but that was what I experienced. I passed blood for up to two months off and on. Sometimes this corresponded to days in which I was trying to do more

2. two weeks is very new in my experience. You will find some men have zero problems with incontinence however from what I have come across most do. Two weeks is not much. I am 71 and am 11 weeks out. I i have stress and urge incontinence. I have seen some progress for which I am thankful but I have quite a ways to go.. I hate it but it is better than cancer

3. in terms of Kegels I love going to a specialist and getting very good expert care . I am paying out of pocket for this but I hate incontinence so much. It really is important to learn how to do them correctly and not to do too many. You may want to check out Michele Kenway's you tubes She has many; here is one to get you started: https://www.youtube.com/watch?v=c0aDJrSiR1A
please be aware that even in the field of urology there is no agreed upon recommendation for how many sets of kegels to do a day. I have heard enough and believe it very much, that you can do too many. I really recommend resisting the urge to do a ton of them. Right now I am doing some very specialized sets of 5 staggered, 5 regular (longer hold) and 10 quick ones X4 I do this twice a day plus stretching and core training all aimed at pelvic floor recovery. In my experience I can sometimes feel that my pelvic floor muscles are tired and sometimes even stuck ( not relaxing all the way). If you get the chance and get to an experienced pt with pelvic floor muscle expertise, biofeedback can help

4. you will also have to retrain your bladder. I was told to start with two hours if possible. In other words I try to hold it and go every two hours regularly- while drinking more water than usual and then try to increase this incrementally., I stop drinking water around dinner time to limit problems at night I am not offering medical advice just my own experience as a patient.

5 I hate incontinence however, what choice do we have? , it is better than cancer and for most men it will go away- but not all. There are more factors like the surgery itself, our conditions prior to surgery, etc

6. I really wish more urologists would alert patients that this likely lays ahead ( and ED). life will likely be different following prostratectomy, From the good research (from pubmed and not urology clinics or practices but from peer-reviewed research)- absolutely the majority of men experience incontinence, many resolve between 3 and 18 months; of course some do much better and unfortunately some have long term issues.
I wish you good luck

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Replies to "1. sometimes the burning irritation at the end of the penis is blood, it may be..."

"sometimes the burning irritation at the end of the penis is blood"
It's more of a sensation, not burning or irritation.

Thanks for replying!