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DiscussionYoung adult daughter opposed to brain surgery
Brain & Nervous System | Last Active: 1 day ago | Replies (8)Comment receiving replies
Replies to "@adoptivemother I’m so sorry for all you and your daughter/family are going through. Are you seeing..."
Thank you. She has a counselor she has been working with for many years but she did not ask any questions at Mayo and rolled her eyes every time I did. They did not sit down and talk with her about pros/cons I think partially because they have not formally recommended surgery yet. That is what all of this testing for but it is pointing in that direction.
She has three types: absence, focal aware auras, and tonic/clonic grand mals. They are increasing in intensity as time goes on. During her auras in the past, she was able to communicate a bit but this last time she was completely unaware of anything around her. Inbetween the cluster, she was aware but could not speak. During the grand mals, her seizures typical and lasted 3-5 minutes. This last one was 40 minutes with two rescues and she was not conscious through much of it. She falls frequently and has broken bones, gotten a concussion, etc. She had a serious car accident when this all began. She does not care that her safety could be at risk because she hates her life and hopes one of these accidents "takes her out". 🙁 Recently, my visiting adult son asked her if she can go in hot tubs, implying the hot water might be a problem and we all laughed and then I said, "But she shouldn't go in alone." and she lost her mind and didn't speak to me for awhile. She asked how I expect her to live her life in fear of everyday circumstances. I had made the comment light heartedly and have never limited her usage of our hot tub.
Her personality has changed dramatically since the seizures began. It could be the Keppra, brain damage, severe depression, or a recently developed psychiatric disorder. It is impossible to know. But she was the easiest teenager and would never have spoken to me then the way she does now or been so oppositional.