← Return to Desperate for Advice

Discussion

Desperate for Advice

Autoimmune Diseases | Last Active: 4 hours ago | Replies (30)

Comment receiving replies
@gefsj2015

Look into pots . Postural orthostatic tachycardia syndrome and ehlers danlos syndrome my daughter has them and most of the symptoms you stated

Jump to this post


Replies to "Look into pots . Postural orthostatic tachycardia syndrome and ehlers danlos syndrome my daughter has them..."

@curiousgirl2468 will get more help if she sees your post. I immediately thought of ehlers danlos because I had many of these symptoms but many doctors don't know much about diagnosing it! EDS, as you know, is on a spectrum. These kinds of syndromes often take years to develop patterns. And how frustrating to the person who feels ill. Your daughter is lucky to have a parent who is supportive.