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Autoimmune Diseases | Last Active: 4 hours ago | Replies (30)
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Replies to "Look into pots . Postural orthostatic tachycardia syndrome and ehlers danlos syndrome my daughter has them..."
@curiousgirl2468 will get more help if she sees your post. I immediately thought of ehlers danlos because I had many of these symptoms but many doctors don't know much about diagnosing it! EDS, as you know, is on a spectrum. These kinds of syndromes often take years to develop patterns. And how frustrating to the person who feels ill. Your daughter is lucky to have a parent who is supportive.