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Tapering prednisone

Polymyalgia Rheumatica (PMR) | Last Active: Apr 25 12:12pm | Replies (26)

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@dadcue

Just to add my two cents worth. When I got off Prednisone I still had aches and pains galore. The pain is "tolerable" and I haven't needed Prednisone for years. It helps when the pain is accounted for and there is an explanation for the pain.

My rheumatologist says I have a "full range of things" which cause pain. She asks me if I need "something" for pain. She isn't referring to prednisone like I took for years. She says there are plenty of other options to relieve pain.

I'm not a glutton for pain. Knowing what causes the pain and that there are other options besides prednisone allows me to live with my pain. Knowing the options gives me more of an idea about how much pain I can tolerate. I have been advised that surgical intervention is a better option but rather than having surgery ... I choose to live with the pain.

PMR pain had no explanation for the cause and it would hurt for absolutely no reason. When Prednisone relieved the pain it reinforced my thinking that it must be PMR.

My thinking was completely wrong. Prednisone decreases the inflammation that causes pain. There are an infinite number of things that cause inflammation and the vast majority aren't PMR.

I agree with @art43 --- "If possible, try to not start chasing random pains with varying doses of prednisone." Do communicate with your doctor if these random pains bother you too much.

I remember reading advice on the internet to increase Prednisone for "niggles of pain." That advice is totally wrong unless a medical professional agrees the niggles are PMR. Most of the time even the medical professionals won't know for sure, However, they have the tools to investigate the cause of these aches and pains rather than assuming it is PMR.

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Replies to "Just to add my two cents worth. When I got off Prednisone I still had aches..."

My doctor diagnosed me with PMR in December. He only started me on 4 mg of prednisone which immediately relieved my discomfort. I had no pain at all. I’m just wondering if PMR is the actual cause of my pain. I’ve read so many things about PMR and how everyone starts at such a high dose of prednisone. I have started tapering by 1 mg every couple of weeks and I started about three weeks ago. I’m down to a dose of 2 mg and I have no pain at all. I’m keeping my fingers crossed that I can keep going and completely wean off of the prednisone. I just have my doubts that that was the actual cause of all my pain. I never had to go above 4 mg. And I’ve only been on it since mid December. Could it be possible that my PMR has burned itself out already in such a short amount of time? I go for blood work next week so I’m anxious to see what my inflammation numbers are. I’ll be really glad once I’m done with this medication. Has anyone with PMR ever started at such a low dose and never had to increase? Has anyone with PMR ever had their symptoms going to remission in just a few months? When I was diagnosed, I was told it could take up to two years for it to go into remission. It’s been barely 4 months. Just curious if anyone’s had the same experience as me.