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Calf Pain for over 3 years with no diagnosis

Bones, Joints & Muscles | Last Active: Apr 9 1:17pm | Replies (20)

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@dlydailyhope

@blu93
If I were you, I would get an updated EMG/nerve conduction study by a new, highly rated neurology specialist, small fiber neuropathy skin punch biopsy and neuropathy bloodwork done by a neurologist, see a rheumatologist for hypermobility testing (Ehlers Danlos syndrome), and see a vein/vascular specialist for a ankle brachial index test/evaluation.

I also have left calf pain and had a recent EMG done that shows nerve damage that did not show up on 2-3 previous EMGs done by different specialists (I have had different results each time). I also have confirmed small fiber neuropathy.

Did your read the details in all of your MRI reports? I have found things that were never reviewed with me by the ordering doctors.

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Replies to "@blu93 If I were you, I would get an updated EMG/nerve conduction study by a new,..."

Testing for small fiber was done in june and was negative. Doctor didn't think sending me for testing of elhers danlos was worth it as treatment was the same as hypermobility.
I found my MRI results.
First one said "Muscle bulk is maintained. Slight increased T2 signal intensity within the lateral gastrocnemius muscle. Fluid signal intensity is seen tracking down the myofascial border of the medial gastrocnemius"
Second "Unchanged mild edema-like signal within the lateral gastrocnemius, nonspecific. Unchanged fluid tracking along the myofascial border of the medial gastrocnemius muscle"
Still waiting on results of the latest MRI.

New MRI shows
There is increased T2 signal intensity within the distal aspect of the medial greater than lateral heads of the gastrocnemius muscles.
Patchy intramuscular edema within the medial margin of the soleus, peroneal, anterior tibialis. and extensor digitorum muscles. There is no muscular atrophy.
Tiny foci T2 hyperintensity involving the fascicles of the deep peroneal nerve (axial images 36 and 49 of series 6) without associated enhancement.
The bone marrow signal intensity of the tibia and fibula is normal. There is no soft tissue mass.

My arthritic right hip causes severe pain similar to yours throughout my lower right quadrant, ankle to right testicle & belly but I’m sure your MRI ruled that out.