1. < Prostate Cancer

Stage 4 PC Longevity: Anyone have prostate cancer more than 10 years?

Posted by ringmastr1 @ringmastr1, May 26, 2023

There is a lot of great info on this forum. I am 54 and was just diagnosed in January with metastatic Stage 4 PC. (Hip, L4, Sacrum, and a small liver lesion). My PSA has gone from 359 in January to .24 last week and I feel great! I am curious to know how many guys on this forum have been treated for more than 10 years and what your quality of life is like. It is stories like this that will give me (and others) more hope. Peace to you all!!!

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

melcanada | @melcanada | Apr 2 6:16am

I go to CVH radiation today Wednesday 9:45 to look at spot radiation of my bone in my back left shoulder Its called palliative radiation to stop the pain as I can't sleep without lots of Tylenol and other
With PSA not going down and with PSMA PET Scan proof last month, I qualify for LU 177 Pluvicto but in 2026 at CVH else PMH downtown I had six injections of Radium 223 at CVH a year ago
This is a good read What is Better: Actinium 225, Radium 223 or Lutetium 177?

Thanks for copying most of this and posting copy @northoftheborder
I posted this in 2024 This too is valuable
https://airomedical.com/blogs/treatment-guides/what-is-better-actinium-radium-or-lutetium-for-prostate-cancer

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melcanada | @melcanada | Apr 2 6:20am

8 years 80 now and feel great see my other posts
Had spot rad to L 4 in 2020 then Xtandi, Radium 223 and now Abiraterone with Prednisone Had 2 chemo's but lungs filled with fluid On Oxygen and Prednisone for six months Have now POC Portable Oxygen Compressor for walking and ACER Rollator from Sweden

I posted this in 2024 This too is valuable
https://airomedical.com/blogs/treatment-guides/what-is-better-actinium-radium-or-lutetium-for-prostate-cancer

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melcanada | @melcanada | Apr 2 7:13am
In reply to @amee "Can lu 177 or Radium 223 can cure Prostate cancer which has spreaded to the bones...." + (show)
@amee

Can lu 177 or Radium 223 can cure Prostate cancer which has spreaded to the bones. And also are Lu 177 and Radium 223 same or different

Jump to this post

I posted this in 2024 This too is valuable

What is Better: Actinium 225, Radium 223 or Lutetium 177?
https://airomedical.com/blogs/treatment-guides/what-is-better-actinium-radium-or-lutetium-for-prostate-cancer

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amee | @amee | Apr 2 8:09am
In reply to @melcanada "Nothing can cure mets to the bones, just control it Kill of many calls but it..." + (show)
@melcanada

Nothing can cure mets to the bones, just control it Kill of many calls but it hands around
Radium 225 is similar but different LU has radium from Nuclear plant and formulated a few days before the injection That is why one must not miss appointment
I posted this in 2024 This too is valuable
https://airomedical.com/blogs/treatment-guides/what-is-better-actinium-radium-or-lutetium-for-prostate-cancer

Jump to this post

Thank you, read the link you shared that is quite helpful.

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proftom2 | @proftom2 | Apr 2 10:07am

I'm just entering year 5. Became resistant 12 months ago, and started Pluvicto 1/27/25. Injection every 6 weeks. Slight PSA decrease after first injection, after 12 months of steady PSA rising a slight down tick works great for me.

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majed | @majed | 3 days ago
In reply to @srob805 "I was diagnosed with stage 4 bone metastatic prostate cancer over 21 years ago. I started..." + (show)
@srob805

I was diagnosed with stage 4 bone metastatic prostate cancer over 21 years ago. I started Lupron soon thereafter. I had hot flashes for about 5 years and then they began to dissipate. I completely lost my sex drive almost 1 year after diagnosis. My wife has been the one to suffer this loss. Hormone deprivation therapy makes you stop thinking about sex, and any attempt to engage is met with disinterest. Thankfully, my wife has stayed with me. There is far more to a relationship than sex.
My PSA is about.04 and holding. I have lost a great deal of muscle mass because I have over done a handful of exhausting projects over the years. But I continue to exercise; although, at low resistance levels. I believe that exercise is keeping me alive. Life is good and I’m not close to checking out!

Jump to this post

Hi, may o ask what was your initial giagnosis?
Did you have mets in bones?
And the gleasin score pleass

God bless you

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marcush | @marcush | 2 days ago

First diagnosed at age 52. I am now 69. I had the prostate removed when I was first diagnosed. The first four years were good, but then the PSA started rising. Since then, I have had one treatment of radiation theory. I now get regular testing and usually a needle to bring the PSA level down. It is a hormone treatment to block testosterone. I experience a few side effects, including tiredness and a lack of energy. The family jewels don't work, they have shrunk. Mood changes are OK, but the new thing is loss of muscle. I'm approximately 5'11" and weigh 90 kg. I do a lot of volunteer work and am retired, enjoying the sun and spending time with my family.
Good luck in your fight.
Marcus

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reets70 | @reets70 | 2 days ago

Thirty years for my husband. And they were good thirty years. The relapses were every 7 or 8 years and were dealt with by radiation or injections. However, he is past all of that now. At the age of 88, the cancer is spreading faster than ever, but we wouldn’t have changed a thing. All of the radiation, injections, medications and worry were worth it!

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