← Return to Actemra sef Injection

Discussion

Actemra sef Injection

Polymyalgia Rheumatica (PMR) | Last Active: Apr 2 7:39am | Replies (12)

Comment receiving replies
@papas

I would be talking to my rheumatologist about this - both times I was paused was the concern for infections and my body’s ability to handle them. Fortunately I did not have any problems. As a side note the Actemra was decided after I had an apparent GCA attack losing about 15-20% sight in my left eye in April 2024, starting 48mg Methylprednisolone tapering to 16mg Prednisone when I began the Actemra. My rheumatologist felt that was the best option for tapering quicker and lucky for me having good health coverage it was affordable. At my most recent visit we decided too continue for the summer at 2mg prednisone because I’m currently feeling either mild Prednisone withdrawal or PMR symptoms. I’m sure as you read more from this great group you will find that tapering below 5mg. can be challenging. best of luck and listen to your body.

Jump to this post


Replies to "I would be talking to my rheumatologist about this - both times I was paused was..."

Thank you again papas.

I'll post a question on the forum about infections and starting Actemra and see what people think. My rhumatologist seems very keen for me to start Actemra to help me feel better and possibly won't go through the process of testing or treating systemic infections first as that might take a while. I will ask her though once I've seen what responses I get from my post.