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Complex Regional Pain Syndrome
I have just been diagnosed with CRPS after a contusion to my heel bone that happened December 8, 2024. Since then I’ve seen numerous specialist. Running test after test on me. Sending me to physical therapy. Latest test was today, vascular Doppler, which came back normal. My foot at first was red, warm to touch and very swollen. After 8 days of that, December 16th, I noticed my foot was ice cold, burning, and almost had a purple/blue tint to it. Ever since then it’s become increasingly worse. The pain in my foot as now moved to my thigh. I forgot to mention I also have a 1.3cm hip labral tear with this contusion to my heel bone. I’m new to all of this. I don’t have many family members alive, the ones I do have don’t believe me. It’s exhausting. Oh, also, sorry I’m everywhere. I broke my wrist in 6th grade and had to have it desensitized and when I told the doctor this, his response was “hmm that’s so odd” so, what helps with the flares? Im on Gabapentin 900mg x3 daily and that’s not seeming to help anymore. I’m scheduled with pain management April 20 something. I’m needing support and encouragement. This is such a painstaking process to go through. The pain just keeps getting worse and my foot is ice cold most of the time.
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i'm amazed that I forgot to mention this… I'm terribly sorry. Find the anesthesiologist that specializes in pain management.
I am just in the process of signing up for the Mayo Pain Rehabilitation Clinic in MN. I have had CRPS in my right foot for 7 years and take tramadol and gabapentin along with a DRG implant from Abbott and a Nalu neurostimulation system in my leg. I am 71 and this is the one thing I need to concentrate on and find relief. I really hope I can find someone or others who can tell me the success that they have had in pain reduction. It is a large commitment, that I don't mind at all. It would just be nice to hear from a patient who has gone thru the program.
Hi, I feel for you and the constant pain you are in. I know firsthand how challenging that can be.
I certainly don’t want to discourage you from attending the PRC at Mayo. In fact, I graduated the program back in 2018 due to multiple spine surgeries, leaving me with constant back and leg pain. I did go to the one in Jacksonville, but I am certain the program is the same. I definitely benefited from the program and highly recommend it for many situations.
However, the PRC is more about teaching you how to be more functional with your pain and giving you strategies to stop “fueling the fire” of your pain.
Spero attempts/claims to be able to actually reduce and/or eliminate your pain. Especially for patients with CRPS. I spent a few months there recently and witnessed crazy improvement for many people. I saw improvement, but not enough to continue paying for it out of pocket. Also, I believe I have a “mechanical” problem that needs to be addressed before I can truly heal.
Anyway, it is at least worth checking out. They will do a no cost zoom consultation with you.
How is the Nalu working? My doc wants to implant it for my CRPS in my lower leg, but my insurance refuses to pay for it!
I live near Charlotte. Do you mind sharing the name of the pain management specialist you saw? Thank you
Has anyone had meaningful success with Scrambler therapy?
My husband and I drove from Tennessee to South Carolina for me to try it. I tried it for a week with no long lasting relief. It masked my pain while I was taking it, but my pain returned before I could leave the building and get to my car. It was way too expensive to continue with such poor results.
Russel Davenport
Russel Davenport. Starting a new practice in Charlotte. He is fantastic. Listens!
Thank you !