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Loss of voice after Arikayce nebulizer

MAC & Bronchiectasis | Last Active: 1 day ago | Replies (33)
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@saminatt

Thank you!! I was trying to find if I can continue even with hoarseness? My doctor said to talk to Arikayce care team. When I called the care team they said they cannot advise. Only my doctor can advise. My ID doc said I am the 3rd patient who is on Arikayce. At the end ID doc said to use it on alternate days.
Thank you for your supportive words. Losing voice is so scary!

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Replies to "Thank you!! I was trying to find if I can continue even with hoarseness? My doctor..."
carolj68 | @carolj68 | Apr 2 12:54pm

By the way, the pharmacists at Maxor Specialty Pharmacy (where I get Arikayce from) are free at anytime to provide information and are able to give clinical advice as well. In speaking to one pharmacist, I was advised to wait until my voice returned and then re-try. In my previous post about resuming Arikayce on the MWF schedule, I neglected to mention that not only did I clear very quickly (7 daily treatments, plus 14 MWF treatments, 20 total) but that I have no side effects whatsoever.

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