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Can anyone share their experience with Pluvicto?

Prostate Cancer | Last Active: 23 hours ago | Replies (137)
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@ksc47

After Xtandi no longer worked and after my husband's first Pluvicto, his PSA rose to over 1,300. In a telemed appointment this morning, the nuclear medicine specialist suggested we consider hospice. I was shocked. A second Pluvicto treatment is scheduled in two weeks, and neither my husband nor I are ready to give up. He is often tired and his legs are weak, but he gets up every morning, comes down a flight of stairs and eats breakfast. Watches a lot of tv, plays his guitars and spends his days like many retired people do. I think we should at least wait until we're sure Pluvicto isn't reducing the cancer at all before giving up treatment other than pain meds. He doesn't need a hospital bed and/or visiting nurse. What do you other cancer patients think?

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jeffMar | @jeffmarc | 1 day ago

Some people have some major side effects from Pluvicto, most don’t. I have heard at least 5 people talk about their experience, In some cases they had to have more time between doses because of the side effects.

I saw a webinar where they discussed a person who lit up the Pet scan With metastasis from head to Legs. He had one Pluvicto Treatment and it almost cleared his pet scan, But his side effects were so bad that he could not take any more treatments

Be aware that it works really well for 33% of people OK for 33% of people and not at all for 33% of people.

If you have certain genetic issues, either hereditary or somatic, it can affect how well Pluvicto Works. You can ask for a somatic test before doing Pluvicto To find out if you’ve got Genetic changes Due to the cancer.

If you have BRCA2 or ATM It seems to work better. If you have RB1, PTEN or TP53 They are Pluvicto resistant. I don’t know if these are the only hereditary changes that cause Pluvicto to work much better or more poorly.

If you have not had a hereditary test, I can give you the Website of a Study where you can get it for free.

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