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@colleenyoung

Welcome to Connect, Alicia.
I'd like to introduce you to other members of Connect who are living with or caring for someone with lung cancer. Please meet @merilee @alvinw @llwortman @shortshot80 @mryzuch @amws and @burrkay.

I want to make sure I understand your question correctly, Alicia. Are you considering stopping active treatment and opting for palliative care? Or have you requested a treatment that your care team advised against?

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Replies to "Welcome to Connect, Alicia. I'd like to introduce you to other members of Connect who are..."

I hope you are not considering stopping any treatment. If you have something that is treatable, keep it up. My lung cancer is not treatable. I have two kinds. One on right lung is plain old lung cancer: Right lung is mesothelioma, which is not treatable. If treatment is available do take it. I am 83 years old and just this year diagnosis with this disease. If there was a treatment available I would do it. Nancy. /..................................................
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Age is just a number and attitude is everything. I am a 8 year 9 month non small cell lung cancer survivor and I have had the amazing opportunity to meet other lung cancer survivors on my journey. I have a friend who was diagnosed with mesothelioma whose doctors told him the would not live 4 months. Both of us Never Smoked!

I literally drug him to Mayo Clinic where doctors decided his mesothelioma was operable. He lived another 6 years after lung surgery. His "quality of life" afforded him the opportunity to get back on cross country skies and ski another 5 years. I also recommended that he take a class about Paced Breathing, taught by Dr Amit Sood. Excellent!!! He felt his life had changed and he was grateful.

Keep up your great work you are the voice of this disease.

Kind regards,
Linda

Right now my husband has received one dose of Zometa, which hit him really hard. He hasn't had anymore and we await to see if he is ALK positive. You really answered my question with the experience your father had. Neither my husband nor I would like to do therapy that only offers a few months of bad side efects. Thank you so much.

Hi: you are race to share your diagnosis. Many people have difficulty reaching out. I know of a man who in fact had surgery at Mayo RST for mesothelioma and it improv d his quality of life fir 5 years. Everyone was pleasantly surprised and it also gave everyone to accept the miracles of surgery and determination of someone in their 80's!
It sets examples in many ways.
Mayo Clinic gives everyone hope and time to live many lessons. Everyday is a blessing and teaches us to be grateful... at least in my case as a 8 year 11 month lung cancer survivor;-)
Bless you!
Linda