Is it possible to have PN with really good reflexes?

Posted by januaryjane @januaryjane, 1 day ago

I've been diagnosed with PN for a few years and saw a new doctor today. He could barely believe I have pn with such good reflexes! He was sort of shocked but I told him I'm a weird one. I mean I had the needles with shocks and all. So, not really understanding his surprise. Any thoughts?? Oh and my pn is idiopathic.

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@januaryjane
I think it may depend on the type and cause of neuropathy and how it affects your reflexes.

I have idiopathic small fiber neuropathy and bilateral carpal tunnel. I also have spinal stenosis, cervical radiculopathy and myelopathy (spinal cord compression injury) but reflexes are still pretty good.

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Good morning, januaryjane (@januaryjane)

Hardly a day goes by when I don't hear about another PN oddity. 🙂 I have idiopathic large-fiber PN, which means balance issues but no pain. I, too, have had EMG's, two, in fact, both indicating a certain amount of lost sensation in the bottoms of my feet. And yet I still have a good deal of sensation in the bottoms of my feet! That's been confirmed by my primary doc, my neurologist (when he's notusing his EMG needles but only his hands), my partner, and myself every evening when I'm massaging my feet.

Rejoice in your reflexes still being "pretty good," as I do the reasonably good sensation in my feet!

Cheers!
Ray (@ray666)

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Take it when you can get it, they may not last as long as you'd like.

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@dlydailyhope

@januaryjane
I think it may depend on the type and cause of neuropathy and how it affects your reflexes.

I have idiopathic small fiber neuropathy and bilateral carpal tunnel. I also have spinal stenosis, cervical radiculopathy and myelopathy (spinal cord compression injury) but reflexes are still pretty good.

Jump to this post

I was diagnosed with moderate sensimotor polyneuropathy in my feet. I have permanent of sensation, tingling, shooting pain, numbness and swelling of ankles and feet at times.

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@januaryjane

I was diagnosed with moderate sensimotor polyneuropathy in my feet. I have permanent of sensation, tingling, shooting pain, numbness and swelling of ankles and feet at times.

Jump to this post

@januaryjane
How long have you had neuropathy and how are you currently being treated for it? Is there any chance it could travel beyond your feet/ankles and have you been told if there is anything you can do to prevent that?

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