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Mycobacterium Kasasii And MAC

MAC & Bronchiectasis | Last Active: 6 days ago | Replies (11)

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@oks

When I was diagnosed with NTM and bronchiectasis about 7 months ago the doctors asked me to have several tests which I did. I also researched for hours for a good doctor. I found one of the best in this field. She is about an hour from me which is no big deal. She also works with an infectious disease doctor who I very happy with.
Research in your area for a doctor that specialized in just your disease. They are out there you just need to find one.
Good luck! I am not on the antibiotic regimen yet. I am looking into alternatives. I do not want to put all the chemicals in my body.

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Replies to "When I was diagnosed with NTM and bronchiectasis about 7 months ago the doctors asked me..."

Have they done a bronchoscope? They take samples and view for lung damage . I suffered with Shortness of breath and weakness for three years until my internal Med Dr demanded the pulmonologist did the bronchoscope after I was coughing up blood . By that time my lungs were already very damaged ! I had mycobacterium avian complex infection . It was also found in my sputum specimen . After 60 days of IV meds and 1 and a half yr of oral antibiotics and Ethambutol. The chronic bronchiectasis and lung damage is what I’m left with . Be persistent to get answers as the nodule formation is a tough result . I have an immune disorder and so I never had blood work that would indicate infection plus I did not have a fever but I would have cool sweats all night long .