Replies to Frank: I began my self-injecting(one/week) Actemra July 10,2024. I read the direction watch videos and have…

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Polymyalgia Rheumatica (PMR) | Last Active: Apr 2 7:39am | Replies (12)

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@papas

Frank:
I began my self-injecting(one/week) Actemra July 10,2024. I read the direction watch videos and have had minimal adverse reactions to the shot. One piece of advice - do remove the pen 45minutes before you inject or you will feel the cold Actemra. It is a simple procedure, with no pain and takes about 2 minutes. I inject in the belly area rotating around the belly button as described in the instructions. During this time I was on a 15day river boat cruse with no problem no refrigeration required all this is in the instruction. I did have to skip two shots, one during a bout with COVID and the other during a tooth extraction procedure. NOTE: I am on 2mg Prednisone having come down from 15mg when I started the Actemra.

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Replies to "Frank: I began my self-injecting(one/week) Actemra July 10,2024. I read the direction watch videos and have..."

frenchfrank51 | @frenchfrank51 | Apr 1 8:51am

Thanks papa's

You say you paused the shots during a bout of COVID and for a tooth extraction and I see that advice on the notes that comes with the medication.

I seem to get regular fungal rashes on different parts of my body, especially on my chest and my armpits. Probably about three or four times a year and properly because I feel very tired and low on energy and (or visa versa). I usually have to take a course of anti fungal meds.

I'm sure I have a persistent, systemic low level of some sort of fungal infection throughout my body which never seems to go away totally.

I see on the notes that come with the injection that having any kind of infection whilst on Actemra could be problematic just as having a virus could. Do you have any thoughts on this?

Thanks
Frank

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