1. < Neuropathy

Is it possible to have PN with really good reflexes?

Posted by januaryjane @januaryjane, 2 days ago

I've been diagnosed with PN for a few years and saw a new doctor today. He could barely believe I have pn with such good reflexes! He was sort of shocked but I told him I'm a weird one. I mean I had the needles with shocks and all. So, not really understanding his surprise. Any thoughts?? Oh and my pn is idiopathic.

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dlydailyhope | @dlydailyhope | 2 days ago

@januaryjane
I think it may depend on the type and cause of neuropathy and how it affects your reflexes.

I have idiopathic small fiber neuropathy and bilateral carpal tunnel. I also have spinal stenosis, cervical radiculopathy and myelopathy (spinal cord compression injury) but reflexes are still pretty good.

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1 reply
Ray Kemble | @ray666 | 2 days ago

Good morning, januaryjane (@januaryjane)

Hardly a day goes by when I don't hear about another PN oddity. 🙂 I have idiopathic large-fiber PN, which means balance issues but no pain. I, too, have had EMG's, two, in fact, both indicating a certain amount of lost sensation in the bottoms of my feet. And yet I still have a good deal of sensation in the bottoms of my feet! That's been confirmed by my primary doc, my neurologist (when he's notusing his EMG needles but only his hands), my partner, and myself every evening when I'm massaging my feet.

Rejoice in your reflexes still being "pretty good," as I do the reasonably good sensation in my feet!

Cheers!
Ray (@ray666)

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mrmacabre | @mrmacabre | 2 days ago

Take it when you can get it, they may not last as long as you'd like.

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januaryjane | @januaryjane | 2 days ago
In reply to @dlydailyhope "@januaryjane I think it may depend on the type and cause of neuropathy and how it..." + (show)
@dlydailyhope

@januaryjane
I think it may depend on the type and cause of neuropathy and how it affects your reflexes.

I have idiopathic small fiber neuropathy and bilateral carpal tunnel. I also have spinal stenosis, cervical radiculopathy and myelopathy (spinal cord compression injury) but reflexes are still pretty good.

Jump to this post

I was diagnosed with moderate sensimotor polyneuropathy in my feet. I have permanent of sensation, tingling, shooting pain, numbness and swelling of ankles and feet at times.

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1 reply
dlydailyhope | @dlydailyhope | 1 day ago
In reply to @januaryjane "I was diagnosed with moderate sensimotor polyneuropathy in my feet. I have permanent of sensation, tingling,..." + (show)
@januaryjane

I was diagnosed with moderate sensimotor polyneuropathy in my feet. I have permanent of sensation, tingling, shooting pain, numbness and swelling of ankles and feet at times.

Jump to this post

@januaryjane
How long have you had neuropathy and how are you currently being treated for it? Is there any chance it could travel beyond your feet/ankles and have you been told if there is anything you can do to prevent that?

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1 reply
januaryjane | @januaryjane | 7 hours ago
In reply to @dlydailyhope "@januaryjane How long have you had neuropathy and how are you currently being treated for it?..." + (show)
@dlydailyhope

@januaryjane
How long have you had neuropathy and how are you currently being treated for it? Is there any chance it could travel beyond your feet/ankles and have you been told if there is anything you can do to prevent that?

Jump to this post

I've been diagnosed a few years by a Neurologist. Right now I'm just taking gabapentin, which helps a lot. I've has the weird sensations in my legs, like a bug crawling, but it's much better with the medication. I know it is supposed to get worse with time but mine is not rapidly declining. I haven't had in depth discussions about it with my doctor, just tell me the basics. The older doctor that diagnosed me retired and now I'm seeing a new one that wanted to take me off gabapentin. So, I'm not very confident with him and will soon try to find a different one. This guy is just a lot closer of a drive...but what do you do?

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1 reply
pah17 | @pah17 | 4 hours ago
In reply to @januaryjane "I've been diagnosed a few years by a Neurologist. Right now I'm just taking gabapentin, which..." + (show)
@januaryjane

I've been diagnosed a few years by a Neurologist. Right now I'm just taking gabapentin, which helps a lot. I've has the weird sensations in my legs, like a bug crawling, but it's much better with the medication. I know it is supposed to get worse with time but mine is not rapidly declining. I haven't had in depth discussions about it with my doctor, just tell me the basics. The older doctor that diagnosed me retired and now I'm seeing a new one that wanted to take me off gabapentin. So, I'm not very confident with him and will soon try to find a different one. This guy is just a lot closer of a drive...but what do you do?

Jump to this post

Why does he want to take you off the Gabapentin?

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