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Have you been tested for GERD and hiatal hernia?
Another thought- maybe your routine is causing some of the mucus production. Have you considered stopping the salbutamol neb and just doing the Symbicort inhaler or its generic version? I found Salbutamol very irritating to my lungs. I switched to Levalbuterol, first nebbed then inhaled and it was better, but now have dropped that for Symbicort- even better. Also cuts neb time by half. Since you are negative for MAC maybe even try 3% saline to calm things down.
Replies to "Have you been tested for GERD and hiatal hernia? Another thought- maybe your routine is causing..."
I have decided to retry the Symbicort, using it prior to nebbing, which is not what I did beforehand...I used it independently. Hopefully that will help and make me compliant with their requests! Thank you so much for the suggestion, Sue.
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Yes I have GERD and have been diagnosed earlier for a hiatus hernia. The last time I had an endoscopy they couldn't find the hernia, and also it wasn't picked up on a barium swallow...so I am hoping that the hiropractic type manoeuvres I did around that area might have undone it (I believe it was a sliding hernia caused by coughing). So it is possibly GERD related but I went off PPIs around 5 years back and don't intend going back on them.
The recommendations were to use a lower dose hypertonic but when I have tried that I don't feel I get as a complete clearance. And I feel the mucus building up badly in between nebbing so doubt that is the cause.
I have been concerned that all the coughing I fo while nebbing is having a damaging affect on my lungs and this is adding to the mucus volume. Have tried to find out if this could be true but haven't had a response. Any thoughts? Not sure what I could do about that anyway...despite professionals who show me gentle/non coughing clearance techniques.. If I did that I can't see myself clearing anything. (But maybe I am wrong?)