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Meningioma: Anyone else? I'm frightened

Brain Tumor | Last Active: 3 days ago | Replies (391)
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@michelegriffen

I had a hearing test which led to an MRI. I was totally surprised to find I have 2 meningiomas. I was also diagnosed with having white spots scattered about in my brain. Both diagnoses are concerning My first appointment with a neurosurgeon has been scheduled for April 16th. I don’t know which issue is worse. I’m often a caregiver for people who have dementia (Alzheimer’s) so I’m quite aware of the disease process but I’m not familiar with brain tumors. I guess I’ll be learning a lot. I also worked for a hospice for 9 years as a case manager (not the nursing side of things) I’m ready to learn what I need to know to make the best decisions for myself. I’m going to make a list of questions to ask. Any suggestions?

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methel | @methel | 3 days ago

First, the good news: surgery can often totally remove and cure meningiomas. (It did, for me).

I would ask how sure is it that what is seen is actually a meningioma? Is located where it is harder or easier to treat? Is my general health good enough to successfully get through the surgery or recommended treatment? What kind and amount of support will I need at home once the treatment has ended? What do you recommend?

I would also ask myself the following: do I have any reason to think that my health will deteriorate in the next few years so that I couldn’t survive surgery 5 years from now that I could now? Am I comfortable with using this hospital and doctors or not? Am I sure that I will have the support at home to get me through the treatments? What about 5 years from now if watch and wait is recommended?

I sincerely wish you the best in the future challenging days.

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