@researchmaven

I have IBS-C and redundant colon and possible celiac. I have so many food restrictions I can’t gain weight now and my docs think it may be an eating disorder! But I would love to eat normally and I do enjoy eating although my diet is very bland and consists of “gentle G.I.” mashed foods. But if I try to expand my choices beyond a handful of “safe” foods, I inevitably get a flare, which involves severe cramping and diarrhea that comes in waves and lasts several hours. I’ve had this since late childhood, but for several decades it was ok and I ate a relatively normal diet. It recurred in my late fifties (I’m 68, almost 69 now), and has been so severe at times I am down to 93 pounds and using an app to try to regain weight. ( throughout my life I was always moderately overweight!) recent CT shows no issues- no diverticulitis (although I do have diverticulosis). Am having abdominal MRI with contrast this week, Have tried Nerva app for brain/gut reprogramming- it’s helpful for relaxation but doesn’t really work for severe flares and food intolerances. I also have weak pelvic floor and have tried some PT and even tens therapy which helped the overactive bladder but not IBS. Had gall bladder removed in 2019, which really helped for a few years to the point I thought it wasn’t IBS at all until the IBS came back with a vengeance a few years ago. I have occasional “phantom gallbladder” attacks now if I eat too much volume at one time or even a little fat. Upper back and chest pain that feels like a heart attack and lasts for hours. I even called 911 for the first time in my life because pain was so severe.
I’m starting to wonder if it all comes down to the redundant colon? Doctors and dietitian seem frustrated. I’m also at a loss what to do. Now that summer’s round the corner, and the smells of outdoor cooking fill the air I feel the loss of and longing for real food again. I don’t despise food it just triggers severe pain. Thanks for listening…