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Looking to connect with people who have non-diabetic neuropathy

Neuropathy | Last Active: 10 hours ago | Replies (1052)
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@dieterreuther

I have idiopathic axonal neuropathy myself, saw my neurologist several times for tests, and unfortunately, based on my experience, you won’t be able to find out more. Idiopathic means that the cause is unknown. And from what I have learned so far, all you can do is manage the symptoms. I try to stay active, eat healthy, avoid alcohol, and get enough sleep.

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Replies to "I have idiopathic axonal neuropathy myself, saw my neurologist several times for tests, and unfortunately, based..."
NJ Ed | @njed | 3 days ago

Same here. Five years ago, diagnosed at Mayo in Rochester idiopathic axonal PN small and large fiber no cure, not a diabetic. You are right, all you can do is try to manage the symptoms and perhaps you nailed it with the words "stay active". That could be the key to help fight progression. Like some others, I am fortunate with no pain, mainly numbness and poor balance. Hopefully, someday, the medical community will figure this out. Ed

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