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Meningioma: Anyone else? I'm frightened

Brain Tumor | Last Active: 1 day ago | Replies (392)

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@eloisebandlady

I was diagnosed last April while being tested for a stroke. (Positive on the stroke). I felt devasted...had a stroke AND a tumor! In a year ...I have learned that 1) it's probably been there a long time 2) it's no one else's emergency 3) it's benign and most likely won't grow, but they will test you regularly to be sure. My first two visits to the neurosurgeon were every 3 months, now it's a 12 month check. I've calmed way down about it now (almost a year later), have learned a lot. I no
longer feel like I'm going to die and have even developed a bit of a sense of humor, saying to my grown kids and dear friends, "Hey! Don't mess with me...I have a brain tumor!!!" Hang in there, you're tougher than you know and you can cry when you feel like it. Then go out and take a walk! ♥️

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Replies to "I was diagnosed last April while being tested for a stroke. (Positive on the stroke). I..."

I had a hearing test which led to an MRI. I was totally surprised to find I have 2 meningiomas. I was also diagnosed with having white spots scattered about in my brain. Both diagnoses are concerning My first appointment with a neurosurgeon has been scheduled for April 16th. I don’t know which issue is worse. I’m often a caregiver for people who have dementia (Alzheimer’s) so I’m quite aware of the disease process but I’m not familiar with brain tumors. I guess I’ll be learning a lot. I also worked for a hospice for 9 years as a case manager (not the nursing side of things) I’m ready to learn what I need to know to make the best decisions for myself. I’m going to make a list of questions to ask. Any suggestions?

Having a sense of humor is great when working through anything challenging.