One knee replacement and will never have another one!

Posted by mabfp3 @mabfp3, Mar 11 6:43pm

Hello to all of my fellow knee sufferers! I had a TKR in 2020. I had a very rough time after the surgery…..allergies to pain meds etc and had to only take Tylenol! PT for six months following surgery. My knee (right) is still painful and stiff, even after the replacement. I had this done at a top Boston hospital with a surgeon that came highly recommended. However, his answer to me with all of this pain and stiffness is “It will never be the knee that God gave you.” Oh, great!!! My left knee is bad but I could never go through this surgery again. I have had cortisone shots to the left knee which are no longer working and recently received three gel shots, which did not help. Both of my knees are so painful! Should I seek out a dr who deals with pain? I don’t know what else to do. Other than these knee issues, I am in good health and am 75 years old (although, other than these knees, I don’t feel like I am 75!!!!). Any suggestions or help would be deeply appreciated! I have tried knee braces, creams, ointments, Voltaran, Advil, Tylenol etc. Nothng has helped!!! Thank you, in advance, for any input! MaryAnn from Boston

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@cathymw

Some herbal supplements can and will interfere with the healing process. Do discuss with your healthcare team. If your meds are running out, discuss this as well, with updates of what your measurements are in physical therapy. I did not know that my flexion (bending) and extension (straightening) had perimeters that were to be met. I certainly did not meet these and by my 6 week check up, my leg was really bent and not flat as it should have been (scar tissue). There is debates all over the place that too little or too much physical therapy contributes to this. I had aggressive therapy where 2 would hold me down to bend the knee to achieve numbers. I couldn't retain these numbers between sessions (three times a week). Grueling.
Had to have that MUA at 11 weeks. He thought he would do that while I was having my second knee done. I cancelled all of that. After the MUA, PT was every day for awhile... then 3x/week...

Can you imagine having PT done on one leg brand new replacement surgery, while the other knee was recovering from the MUA? Impossible. That was when I started to lose my trust...

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I too have lost trust in Drs even caring, it's so different from when I was growing up. You trusted Dr's unconditionally and now I question everything. It sure seems like surgery is offered immediately and then after surgery, Dr is MIA

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@mabfp3

I am so sorry for all of the pain that you experienced. What is MUA?

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Thank you. Manipulation under anesthesia. Cracking the joint manually by your surgeon to break up the scar tissue.

I’m very thankful I have a functioning knee now. I’d still give it a “C” though. Not what I thought would be the outcomes. I did everything I was suppose to do.

If you don’t things are going right- get a second opinion. And do it before week 10 post-op. Also make your concerns known early, as it was covered in the original bundle cost as I had raised questions. Your surgeon needs to do the MUA, not a new Dr.
MUAs are most effective when accomplished before week 12 post-op. It only takes about 10 minutes so don’t let them say their schedule is too full. I had mine done at about 6:00 a.m. before the real surgery schedule started. Still have to be sedated with pain meds as well. There are risks as well. But, now I can get to 0* straight and 125* flexion. Can hike and ride my bicycle again.

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@cathymw

Thank you. Manipulation under anesthesia. Cracking the joint manually by your surgeon to break up the scar tissue.

I’m very thankful I have a functioning knee now. I’d still give it a “C” though. Not what I thought would be the outcomes. I did everything I was suppose to do.

If you don’t things are going right- get a second opinion. And do it before week 10 post-op. Also make your concerns known early, as it was covered in the original bundle cost as I had raised questions. Your surgeon needs to do the MUA, not a new Dr.
MUAs are most effective when accomplished before week 12 post-op. It only takes about 10 minutes so don’t let them say their schedule is too full. I had mine done at about 6:00 a.m. before the real surgery schedule started. Still have to be sedated with pain meds as well. There are risks as well. But, now I can get to 0* straight and 125* flexion. Can hike and ride my bicycle again.

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So happy you are doing well and things turned out so well after all. I am very interested in your opinion of the "bundle" and you are the only one I ever heard mention it. I had never heard of it before and after I had done all the pre-surgery requirements, a lady called me from the dr office and told me I could not see ANY doctor unless sick for 3 months after surgery. I asked her why and she mentioned the bundle and this was the dr's protocol. This was 10 days before the surgery and they had never told me this. I had several appointments already scheduled with drs that took up to a year to get an appointment. I told her there was no way I could comply with that and wound up canceling the knee surgery. I don't think I am going to re-schedule. What is all this "bundle" talk. I asked the surgeon and he tried to explain but I never really understood. He said it was very complicated, but my thoughts are he was trying to preserve his cost ratio and was trying to prevent any complications, although he did not specifically say that. If I ever do decide to have this done, which I doubt, I will ask if they replace based on bundle services.

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@lindielulu

So happy you are doing well and things turned out so well after all. I am very interested in your opinion of the "bundle" and you are the only one I ever heard mention it. I had never heard of it before and after I had done all the pre-surgery requirements, a lady called me from the dr office and told me I could not see ANY doctor unless sick for 3 months after surgery. I asked her why and she mentioned the bundle and this was the dr's protocol. This was 10 days before the surgery and they had never told me this. I had several appointments already scheduled with drs that took up to a year to get an appointment. I told her there was no way I could comply with that and wound up canceling the knee surgery. I don't think I am going to re-schedule. What is all this "bundle" talk. I asked the surgeon and he tried to explain but I never really understood. He said it was very complicated, but my thoughts are he was trying to preserve his cost ratio and was trying to prevent any complications, although he did not specifically say that. If I ever do decide to have this done, which I doubt, I will ask if they replace based on bundle services.

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It was a cost ratio thing based upon a Medicare reimbursements- though I was not on Medicare. But insurance reimbursements are all based upon n Medicare standards somehow.
Somehow there was a warranty involved that would never knew about.

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