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Life while being treated

MAC & Bronchiectasis | Last Active: 50 minutes ago | Replies (50)

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@bayarea58

@winema I don't know if someone has already commented on this but the treating guidelines, and as far as I can tell the NTM experts generally, recommend 12 months of the recommended antibiotic treatment once the patient tests negative for MAC. You may want to review the treating guidelines and circle back with your doctor on the suggested 6 months. Obviously 12 months is a long time (and who wouldn't want to cut that in half) but the general consensus seems to be that patients have a better chance at staying clear of the MAC with a full 12 months of treatment, measured again from the date the patient tests negative for MAC. Good luck!

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Replies to "@winema I don't know if someone has already commented on this but the treating guidelines, and..."

Yes, lots to think about. I haven't even begun treatment, not sure I'm going to yet. I've been given so much conflicting info (not on this site, but from doctors over the years) that I'm going to seek 2nd and maybe 3rd opinions before doing anything. I am going to start the hypertonic saline nebulizer treatments (regardless of what pulmonologist says) and probably get a bronchoscopy since it's been 11 years since I've had one.